The Show Must Go On

I’m struggling today. I need to write how I feel because it helps me and maybe in helping myself I can help you too?

The anxiety isn’t as severe as it has been. It’s a manageable 6/10 but my numerous annoying ailments have decided to come out and play at the same time. My neck is sore. My tinnitus is driving me INSANE and I have the beginnings of yet another migraine.

I try to look at the positives. As in, I’m still alive. I wasn’t one of the 151,600 people in the world that died yesterday. I’m still here. Yet it’s like trying to drive on a flat tyre. Only in my case, a new tyre isn’t an option. The tyre represents my brain and I can’t just go out and buy a new brain. Unless Ebay have started selling brains?

A lot of the things I am experiencing today are not actually anxiety symptoms. I’m 47, therefore it’s natural for there to be wear and tear, especially as most of my jobs were heavy manual work. I’m only five foot one with a small frame so I’ve put a lot of strain on my body over the years. What can I say? You do what you have to do to put food on the table.

Due to my autism, these little annoyances become amplified and it has to be said that anxiety, while it doesn’t cause them, DOES make them feel worse. Stress hormones affect the bones and joints and I’ve always noticed that when I go through a phase of increased anxiety – my aliments are worse. Obviously, the answer is to address my anxiety and all these other things should start to improve. This doesn’t mean that I don’t feel pissed off though. I’ve forgotten what it is to feel ‘well’ because it’s been that long since I felt that way. Another thing that pisses me off is that I never appreciated good health when I had it. I used to hear older people say, ‘You don’t appreciate good health until it’s gone’. Too farking true, me dears.

I get it. I’m middle-aged, post-menopausal and slightly mad. How can I expect to feel like I did in my twenties or thirties? I’m lacking the necessary hormones for a start. My body is crumbling like Cheshire cheese. I’m getting older and let me tell you that it comes around TOO DAMN FAST. It seems like yesterday that I was snogging Nick Rhodes on my bedroom wall. Now I can see 50 waving at me (hopefully) and with that comes the realisation that I am well over half way through my life, if the three score years and ten is to be believed? Sobering thought, eh? Enough to make one want to pissed, only I can’t drink because I have ANXIETY.

Another way of looking at it and probably THE best way is not to mourn my youth but to thank my stars that I have a decent amount of life to look back on. Health wise, that is.

I lost my friend to cancer last year. She was one year older than me with so much more to give, especially to her eight year old son. When I think of what she went through it makes me guilty about whinging on about stuff. She’d have given anything for my problems to be hers instead of the cancer which was invading her body at an alarming rate. However, if you are reading this and thinking that her death should have been enough to make me ‘get a grip’, then my friend, you have NEVER experienced anxiety disorder because it is an illness. I’m not talking about the normal anxiety that every human being experiences, like the nervousness before a job interview or those few seconds after you hear a loud bang. I’m talking about the kind of anxiety that’s debilitating and destructive. It’s a very real illness. Just not one that can be seen. It’s effects, however, are visible to all. If you look close enough, you will see the fear in their eyes. You will see the tremor in their hands. You will notice their inability to be still. If you are sensitive enough, you may even smell their fear. These are the outer signs of a body that’s fucked up due to stress.

Thankfully, I know that recovery from mental illness is achievable for most of us and if it can’t be cured, it can definitely be managed to give quality of life. That thought acts as a light when my skies are dark. Another light comes in the form of my children. A funny text or a phone call from my eldest boys. Or today when I woke up to a dark inner sky. A sleepy voice said, “Cuddle me mama?” and some of those dark clouds lifted. Not enough to make all of this sodding crap go away but enough for me to have the energy and will to keep fighting it.

If you are struggling with anxiety, know this. You will win some battles and you will lose some but you CAN win the war. It really isn’t about how many times you fall down but about how many times you get up again. I know you are tired. I know your soul is weary but KEEP GETTING UP. Even when your legs feel so heavy you don’t think they can support you. THEY WILL. They are STRONGER than you think. YOU are stronger than you think. Rest if you need to but then you must get back up.

Life is a show and we must get on with it as best we can because this isn’t the rehearsal. There never was one in this show called ‘Life’. So, do that pile of ironing, even if it you do it sitting down and it takes you ALL DAY. Walk the dog. Hoover up. ON WITH THE SHOW!

The show must go on
I’ll face it with a grin
I’m never giving in
On with the show.

The Show Must Go On ~ Queen ~ Brian May

 

Letting Go

September 1982 ~ Secondary School Cloakroom

*flashback to the odour of sweaty plimsolls, Impulse, and the sound of dripping taps*

I’d just started secondary school. Everything was strange and scary. You know how it is? I was in the cloakroom hanging up my coat when a shadow appeared in my peripheral vision. I looked to see that the shadow had frizzy hair and was the size of a barn door. IT was a grizzly bear in school uniform and IT was looking at me with an expression which I couldn’t accurately place. All I knew was, my stomach was doing somersaults. According to my friend, IT was a couple of years older than us and IT had a reputation for being a cow.

Out of nowhere, IT hit the side of my face with an open-handed smack, leaving a red mark behind.

WTAF?!

For a second or two, I was seeing stars, the blow was THAT hard.

IT was towering over me while her cronies stood in the background sniggering like Beavis and Butthead.

‘What did you do that for?’ I asked IT, rubbing my face.

IT bared her teeth and said, ‘I. DIDN’T. LIKE. THE. WAY. YOU. WERE. STARING. AT. ME’.

I couldn’t help but notice that she hadn’t cleaned them..

Staring? It was no more than a glance. You’re not exactly easy on the eyeballs, Mate.

Is what I WISH I’d have said.

Right after I bitch-slapped her face with a size 9 plimsoll. No, make it 10.

Once IT had left the room, my friends suddenly found their voices.

Oh, THERE you are! I thought.

‘I wouldn’t let IT get away with that. You have to tell a teacher!’. They said.

So, I told a teacher, who just happened to be the deputy head. I don’t do things by halves, me. IT was made to apologise to me. Not one to one in the deputy head’s office but in front of EVERY girl in the school. No doubt, Miss felt this necessary but what all it achieved was guaranteed bullying for the foreseeable. Nice job, Miss. *double thumbs up*

I have loads more of these type memories. This is because people mistake sensitivity for weakness. They sense the opportunity to make themselves feel important by making people like me feel inferior. It’s taken me all these years to understand that it’s they who are the weak ones. IT was built like a brick shit-house but did she pick on someone her own build or bigger? No. She picked on an awkward looking first year. Well hard, eh?

Happy and well-balanced people don’t bully others. They are the ones with the problems. As for the ‘victims’. Well, I hate that word for a start because it implies weakness. I never was and never will be, a ‘victim’. The tears might have stung my eyes that day but they never fell. I REFUSED to let them fall and it takes a LOT of willpower to withhold tear flow, trust me.

At home, I cried myself a river. Snot. The lot.

Then I doodled pictures of IT, giving her a MASSIVE perm that took up half a piece of A4.

Then I wrote something like, WHY DON’T YOU JUST DIE, YOU GREEN-TEETHED FUZZY-HAIRED COW. MAY ALL YOUR ZITS MORPH INTO FESTERING BOILS THAT REQUIRE LANCING. I. HATE. YOU.

Then I probably comfort ate my way through a six pack of Penguins. And maybe a few packets of crisps.

Via therapy, I have concluded that the problem was never with me but what to do with all these thoughts that are fighting for space in my head?

BALLOONS.

Actual or imaginary, BALLOONS.

I’m going to need a LOT of balloons…

The memory of IT will go into a beautiful yellow balloon, symbolic of her cowardly act towards little me.

A bully’s ‘power’ always comes at someone else’s expense. They choose someone smaller and more vulnerable than themselves. IT targeted me and having received no physical retaliation, she knew I was fair game for the forseeable. Had I have hit her back that day, I probably wouldn’t have had any more trouble from her. As it was, I didn’t and so she made my life miserable.

Nobody stood up to her for me. My friends looked the other way whenever IT pushed me into the wall or tripped me up. I get why. While she was picking on me, she was leaving them alone. I get that but I resent it. Is that what friendship is? To look the other way when your friend is being hurt? I often wonder if Beavis & Butthead were IT’s friends simply because it ensured that they were never on the receiving end of her fist? Either way. Those f**kers can have a balloon each as well.

No doubt IT has long forgotten about the little girl who’s face she slapped for no reason at all. I wonder how she’d feel now, to know that she is being placed in an imaginary balloon and buggered off into the stratosphere as part of a therapy cleansing exercise? I would be MORTIFIED if I knew that I had done something to warrant such an act. However, this isn’t for IT’s benefit. It’s for mine.

Dearest IT,

Firstly, I don’t apologise for calling you IT. That September day, you treated me like a sub-human yet it was YOU who acted like one, hence, I am calling you, IT. It’s either that or COW.

I hope you evolved into a better person and that you and yours are happy. If you are alone, maybe you need to work out why that is? We create our own stories but it really is never too late to change the script. I’m changing mine with the help of balloons.

The last time I saw you was in 1986. You got onto my bus outside college. You saw me but pretended you hadn’t. Funny how you weren’t so tough without Beavis & Butthead flanking you. You were just a scowling-faced teenager with a REALLY bad perm.

I’ve been hauling you around in my head all these years but it’s time for you to float off, dear. So without further a do..

I forgive you.

Maybe you were mean because your home life was shit? Maybe your parents didn’t show you enough love? Maybe you were bullied yourself? If any of this applies, I feel for you because I know how it feels to be hurt. However, you always had the choice how to conduct yourself. NOTHING we do or say comes without the freedom of choice. You could have shown me some kindness on my first day in a strange school but you chose to show me the palm of your hand instead with the full force of your weight behind it. While I won’t ever forget what you did, I can release this memory’s hold over me. That’s my choice.

Goodbye IT.

Regards, ME

One balloon down. 8,567 to go.

“A young outcast will often feel that there is something wrong with himself, but as he gets older, grows more confident in who he is, he will adapt, he will begin to feel that there is something wrong with everyone else.”~ Criss Jami, Killosophy

 

Too Much Information

The internet is a great invention. There is literally nothing that you can’t find out via the world wide web in a matter of seconds and I quite like the fact that I can do my shopping online while wearing my rollers and tea-stained nightie. This means that I don’t have to put myself through the sensory nightmare of crowded supermarkets. I also like how I can keep in touch with people without having to physically write because I HATE writing. However, there is a downside to the internet and that is INFORMATION OVERLOAD.

The accurate term is ‘Cognitive Overload’.

Our brains are designed to take in lots of information but it seems that technology is moving way too fast for our brains to keep up. Cognitive overload can lead to stress and for sensitive people, like myself, it can make you PROPER CRANKY.

Wandering around a bookstore the other week, yes ACTUAL BOOKS, I was amazed (not) at how many relaxation/meditation books there are now with authors urging us to ‘unplug’ and simplify our lives. I came away with a book called, ‘Unplugged’. I was attracted to it because I was overwhelmed. After a four month hiatus from debilitating anxiety, I was hurtling towards burnout stage faster than a seagull after a Harry Ramsden chip on Blackpool pier..

One night I sat up in bed watching the hours crawl by (AGAIN) and I told myself that I would do whatever it took to get myself back to generally insanity, as opposed to ‘AM LOSING IT, DOC’ – insanity.

I realised that the internet is both friend and foe and that my use of technology was taking up the majority of my day, in one form or another. The first thing I did was to put an ‘out of office’ message on my Twitter. I normally just disappear for a few weeks but this time I felt obliged to inform the world of my absence. I suspect many may be praying that I don’t return ha ha.

The thing about Twitter is the volume of information in one hit. It’s a real emotional roller-coaster. On top of this emotional baggery is the news of the day – fires, terrorism, deaths, politics and Trump being a dick. It is an PHENOMENAL amount of information. The brain then has to trawl it’s way through the quagmire of info and somehow make sense of it. Is it any wonder that my dreams have been psychotic, if the last thing at night I am reading is this lot?

I’ve adjusted the brightness on my phone and enabled the night-setting. On my Kindle, I have changed my font to white on a black background which is easier on the eyes. I also make sure that I don’t have my phone by my bedside at night. If it’s there, it’s too easy to open it up and check in with the world because I will be gutted if I miss that Instagram pic of somebody’s ingrowing toenail, eh?

There is also evidence to suggest that Wifi signals emitted from phones and gadgets next to your bed can interfere with your quality of sleep, so if you are sleeping poorly and you charge your gadgets next to your bed, or worse, sleep with them under your pillow – it might be an idea to remove them from your room and see if your sleep improves? Why people sleep with their phones under their pillows is beyond me. Vibrating phones in pockets, I get. But pillows? No.

Its not the technology itself that is making me ill, well, maybe it is when it comes to migraines. It’s more to do with the amount of exposure I am getting and that choice is mine. Nobody forces me to check Twitter or look at pictures of somebody’s pie and chips on Instagram. It’s me.

I knew the amount of information I exposed myself to was hurting me. I was incredibly stressed out and needed to do something before I got back into breakdown territory. I couldn’t go back there again. NO FLIPPING WAY, HOSE!

So, I experimented..

The Experiment: To See If Using Electronics Less Improves Stress and Sleep

Monday

Kindle – 2 and 1/2 hours

Internet – 1/2 hour (e mails)

Instagram – 1 hour

Total = 4 hours

Sleep – 1am until 6am.

Reason I was so late was because ah wes watchin Catherine Cookson on telly an ‘ah forgot abyeut the time. It turk us an hoor tuh git tur sleep, pet. :/

Quality of was sleep improved.

Dreams not exactly sweet but nowhere near as funky.

Tuesday

Internet (e mails & blog) 1 hour 5 mins

Kindle (three hours)

Instagram 30 mins

Total = 4 hours 35 mins

Sleep -10pm until 7am

Woke up a few times in-between but not enough for it to be a problem. Dreams improved.

Wednesday

Internet (e mails & blog) 30 mins

Kindle – 4 hours

Instagram 30 mins

Sleep – 12am- 7.30am

I struggled to get off to sleep, probably because I’d watched another strife ridden Cathy Cookson before bed. I tossed about for a couple of hours but once asleep I pretty much stayed asleep. I had one of my reoccurring dreams where I buy the house where I was born, only it’s a lot bigger than it actually was/is. Also, it’s part house/part social club where you access the magical world of darts, pool and beer via the loft? No. I have no idea where it’s come from either. A pleasant addition to this particular version of the dream was that my parents were in it. My DEAD parents. Only, Dad was telling me I would have to get rid of some of my books.

WHAT?!

That one is easy enough to decipher because we need a new book case as I have too many books! Actually, what am I saying? You can NEVER have too many books!

Thursday

Internet (e mails & blog) 30 mins

Kindle 4 hours

Instagram 15 mins

Sleep – 11pm until 7am.

I had a few dodgy dreams but the one thing I did differently was to read my Kindle until 9.30 pm. *slaps wrist*

Friday

Internet (e mails, blog)  1 hour

Kindle 4 hours

Instagram 10 mins

Sleep = 10pm – 6.45 am

Dreams were NON ANXIETY and representative of what I had done that day.

Saturday

Went on electronics for hours on end to see if it was, like, a placebo effect.

It wasn’t.

I was wired all day and struggled to sleep at night. Stephen King was writing my dreams again and I awake from 5am on Sunday morning feeling like I’d been steam-rollered.

Conclusion

The evidence strongly suggests that my use of technology IS affecting my anxiety, sleep and general well-being and by making a few teensy adjustments I have improved things significantly and I have to admit that I feel better for it.

When it comes to dreams, my brain was starting to decipher actual things in my life instead of random rubbish via the internet and because I was getting more restful sleep, my body was feeling more refreshed on waking. I may not been Julie Andrews first thing but I wasn’t the total Mumzilla, either. I had more energy and my short-term memory was less shit. It was by no means a cure but it was a good enough improvement for me to consider spending less time on electronics for the foreseeable.

If you spend a lot of time on computers and stuff and are struggling with anxiety or sleep, maybe it’s time you unplugged?

Disconnect from technology to reconnect with yourself.

 

 

 

Diary of a Wimpy Kid – The Long Haul – Autism Friendly Showing

The Boy LOVES the Diary of a Wimpy Kid. He’s a big fan of the books and loves the films..

Before his 8th birthday, he’d never been to the cinema. This is because he’s autistic with sensory processing disorder and the cinema is a very sensory experience with sound, lighting and crowds. We’ve known about autism friendly showings for a while but no film interested him until Diary of a Wimpy Kid – The Long Haul came out, so we decided that this would be as good time as any to see how he coped with the experience. On this occasion, it was at the Odeon cinema.

For those unfamiliar with Diary of a Wimpy Kid series, the main protagonist is American middle school student, Greg Heffley, who starts sixth grade and writes down all his thoughts in a diary – though he prefers to call it a journal. Greg is always getting himself (and his family) into the deepest of poo. Put it this way, if I was his ‘Mom’, I would need gin via an intravenous drip.

The Film

Greg Heffly is involved in a particularly embarrassing incident in a family restaurant and plans to turn shame into fame by going to meet his idol, Mac Digby, at a gaming convention. However, Mrs Heffley forces the family on a road trip to attend great-grandma Meemaw’s 90th birthday party. As usual, things go wrong spectacularly wrong in true Heffley style.

The Cinema Experience

First thing’s first…SWEETS!

 

Five minutes staring at the Pokemon toys..

 

Brew Before We View..OOH rhymes..

 

Then it’s in we go..

Adjustments for autism friendly showings include:

  • a relaxed environment where people understand the needs of children and families with autism
  • lights left on low
  • sound turned down
  • no trailers or advertisements (unless they are embedded in the film)
  • staff trained in autism awareness
  • disabled access
  • chill out zone, where available
  • freedom to move around and sit where you like
  • bring your own food and drink
  • free entry for carers with valid CEA Card.

I liked how relaxed it was. I’ve seen numerous films in my time and it’s always taken me a few days to come down from my ‘high’ due to over-stimulation. With the autism friendly screening, however, I was absolutely fine. The Boy LOVED it. He wasn’t anxious at all. He was excited but not overwhelmed. GET IN!

One thing that short-circuited my brain was the fact that ALL the actors have changed from the first three films. I didn’t do my usual research so I wasn’t prepared. Nor did I look too closely at the advertising posters (OOPS) and I found it hard to get my head around at first because I’m autistic and don’t like things to change. However, Zachary Gordon (who played the original Greg Heffley) is now 19 and the original Roderick (Devon Bostick) is 25.

I’ve seen some less than favourable Twitter comments about the change of actors, especially the new Roderick with whingers (mostly girls) hash-tagging #NotmyRoderick.

HERE’S THE THING, GALS

Greg and Roderick Heffley do NOT age in the books so a recast is inevitable. WAKE UP AND SMELL THE POPCORN!

Personally, I think Charlie Wright does a decent job as Roderick, so, NER.

There are some laugh out loud moments but, for me, The Long Haul isn’t quite on par with the other films of the series. That said, The Boy thought it was ‘hilare’ all the way through.

I’m obviously old and miserable, but then, I probably have more in common with Great Grandma-Meemaw than anybody else. *sighs*

My rating for the autism showing experience at The Odeon is 9/10. This is definitely something we will do more of as a family. The only whinge I have is the ASTRONOMICAL price of sweets. Then again, you are allowed to take your own food and drink in so I guess I’ll just have to shut my face on that one, eh?

As for the film itself, I’ll give it 6/10 for some REALLY funny moments.

The Boy rates this film 58 million.

I’ll leave the last words with him..

“The cinema is great. That’s it for the cinema.

The film was very, very, very funny and exciting and awesome and also happy at the end.”

Eat your heart out, Kermode.

This experience (and film) gets The Boy’s stamp of approval.

This is not a sponsored review.

 

Alone in the Universe

I like to be alone.

I am completely comfortable in my own company, probably because it’s only when I’m alone that I can be myself. There’s no need to pretend to be normal. I can just be me.

When it comes to loneliness, people usually identify it with physically being on their own. Not me. I can be in a room jam-packed full of people and still feel incredibly lonely because I know I don’t belong. That’s my lonely.

I didn’t ask to be born. None of us do. We are here by choice or mistake and nine months later, out we pop, with no instructions on how to do life. We are at the mercy of those around us and all too often those people let us down.

Those people who had a duty of care to me at school let me down.

As a child I played alone until the age of five and then I had to attend school, or ‘shithole’ as I call it.

School was where I was expected to socialise and interact using skills which I didn’t possess or understand.

School was where I was bullied by children AND teachers.

School was where my sense of not belonging started.

It was clear that other children didn’t like me but I didn’t know why. I tried my best to be invisible but all that did was make me even MORE conspicuous. All I know is that I came to dislike myself too because of it. I couldn’t bunk off because I knew it was wrong. Nor was I able to express my struggles to my teachers or parents so I had no choice but to endure every hellish second of it until I got home.

Home was where I felt safe.

Home was where I was loved unconditionally.

Home was where I could lose myself in my obsessions.

Yet even with my closest family, I was unable to be me. I belonged, yes. My parents would have loved me regardless of anything but I didn’t know how to be myself in front of them. Most of the photographs from my formative years are of me looking away from the camera. That was me before life pressured me into being someone I wasn’t in order to try and fit in. Personas and masks became necessary in order for me to survive.

Something that is common to ALL humans is the need to belong and be accepted by others. I have a need to belong in some meaningful way just as much as anybody else and I want to leave this world having made a difference in some small way. Yet for most of my life, I have felt alien, like I don’t belong here. I breathe the same air. I am a human being in every respect of the word except that my brain is wired differently and people know you are different. They can sense it even if they can’t see it, like Will Smith in Men in Black, who can spot the aliens a mile off despite them wearing their ‘human suits’. That’s how it feels to be me sometimes – an alien wearing a human suit.

These past few months have been an eye-opener for me. The most important change is that for the first time in my life I no longer feel alone in this world. Why? Because there are 700,000 autistic people in the UK alone so add to the rest of the planets autistic population and that’s bloody shit-loads!

There is an autistic community where I don’t have to think, ‘Will this freak people out?’ before I ‘speak’ because people get it. Imagine. After ALL these years. I get to be my freaky self and other human beings say, ‘Yeah, I do that’.

AWESOME!!

I’m hoping that the therapy I am currently receiving will help to address the many years where I was treated badly simply for being me..

The girl who walked up to me one day and slapped me across my face for no reason at all? She was a coward. She was a big girl hitting a small girl – a bully who needed to be flanked by her cronies at all times. I blamed myself for so many years but I know now that I wasn’t responsible for what she did. Nor have I ever been responsible for the actions of others. The problem is with them, not me.

At some point I need to let the past go and move on in order to make the most of the time I have left. Four years ago I felt that nobody would ever understand how I feel. Then my son was diagnosed ASD and I knew that I was autistic too. On hearing my own official diagnosis, I got control back of my life. I know who I am now and why I am different and these next years of my life are going to be lived MY way. I may be in a minority but my life counts just as much as everybody else’s on this planet.

It always has.

I still like to be alone because that’s when I function at my best but liking to be alone and feeling alone in the world are very different things. That’s changed now. There are people in this world who get me. There are also people who don’t get me but are willing to understand and support me. So you see, I am not alone in the universe.

CC Image Via Pixabay

 

 

 

 

 

 

 

 

 

Summertime Blues

On the day I was born THIS was number one in the Top 40.

“Have a drink, have a drive”

Have a crash?

Side-burns and demijohn as a percussion instrument aside, it is a catchy tune, but I’d rather have hung on in there for a few more weeks and slithered out to Elvis Presley’s The Wonder of You. Then again, it could have been Tom Jones’ Daughter of Darkness, which some light say, would have been more apt.

It was summer. The days were long. The jeans were flared and summers seemed to go on FOREVER, as happens when you’re on child-time because child-time is different to real time. Everyone knows that, right?

The skies were bluer. The clouds puffier and the sun cracked the pavements EVERY SINGLE DAY!

Then there were family holidays..

I’m fairly sure we went away most years but I only remember a few holidays and judging by sulky chops on most of the photographs, i.e. me, I can only imagine that I was my usual shit self during each and every one of them. I can only apologise to my parents who no doubt sacrificed all year in order to give us a nice holiday. If they were alive today, my autism diagnosis would maybe go some way to explain my behaviour…

I tried hard to enjoy holidays but being in unfamiliar places (and sleeping in strange beds) sent my anxiety orbital. The beds often smelled funny and had, er, unidentifiable stains, and at that time my olfactory sensitivities were monumental. Also, I couldn’t verbalise my problems so this reflected in my behaviour. I was either ‘showing off’, ‘naughty’ or ‘moody’. Moody, I’ll hold my hand up to but I wasn’t ever intentionally naughty and I was too introverted to ‘show off’. What I was, was overwhelmed…

It also pissed me off how flies used to do that circles round the light fittings. Why do they do that? Daddy Long Legs were much bigger when I was a child. They. Were. HUGE. Spiders were the size of COWS and the world was against me in general. Despite all this, I was supposed to enjoy myself?

Sometimes we stayed in B & B’s. I HATED that. It was bad enough being in a strange place with my own family without having to cope with being around strange people too? Strange sociable people who really annoyed me with their constant, “Are you going to give me a smile?’

No. Eff off.

I didn’t say the F word, obvs, as Mum would have ended my life, but I certainly thought it. Why couldn’t they understand that I looked miserable because I FELT miserable?

Then there were the days out..

If I was lucky there would be a plan and I’d know where I was going (sort of) but more often than not Mum and Dad did the ‘spontaneous thing’ which cremated my brain. The result?

This.

Beach days were the worst.

What child doesn’t like the beach?

Me.

I like it now (when it’s empty) but not then. Never then..

I considered it a breach of my human rights to be made to take my clothes off on a beach in front of strangers.

“Who do you think’s looking at you?!”

Well, I don’t know, Mother, perverts perhaps?

To be fair, most children stripped off without a care in the world but I wasn’t like them was I? I was a self-aware misfit. I refused to remove so much as a sock without Mum standing in front of me with the biggest bath towel we had and even then I tried to keep my knickers on under my bikini bottoms. Yes, I was that girl.

One bikini in particular stands out in my memory. I was about 4 or 5 but it was way too big for me. In those days, you had to grow into stuff so nothing fitted. The top was more like a scarf and the bottoms were saggy-arsed which was dead amusing, apparently. The relief when I was upgraded to a swimsuit was IMMENSE!

The whole beach experience was an onslaught to the senses. The smells. The noise. The stimuli..

We had a little Calour Gas stove and I liked the smell of the gas. Possibly inhaled more than what was healthy for me, though. Then there was Ambre Solaire which Mum and Dad slavered over themselves. They’d sit and sizzle in their deck-chairs, havin’ a smoke and drinking countless cups of tea and be in some kind of heaven while me and my brother whinged like buggery – him because he was stuck with his moody little sister and me because I wanted to be sand free and back HOME with my Enid Blyton’s.

I feel guilty about it now because Mum and Dad worked hard to keep us fed, clothed and living in a nice clean home. They deserved a nice holiday but I always managed to spoil it for them, not that it was EVER deliberate.

When it comes to weather – THAT summer of 76 overrules all other summers in my entire memory.

In the Summer of 76, the average house cost £12,704. Wages were about £72 p/w (in those days they came home via a brown envelope) and a loaf of bread cost 19 pence. 19p!!! You could get a huge bag of sweets for like 5p. Imagine that, Kids?!

It was, like, SOOOOOOOO hot, the tarmac on the roads melted. Google it!

Chopper bikes, Space Hoppers, Quosh (warm), water shortages, IRA bombings, unemployment, flares, platform shoes, white dog poo, really great music, really shite music, melty roads and deviant DJs. The 70’s had the lot. I don’t remember the serious stuff because I was just a kid. What I do remember is how uncomfortable I felt in general. Summer is supposed to be fun but it’s not that simple for sensitive souls is it? Plus, I have to remove my cardi, which is like asking an NT to remove a kidney.

Dare I say, roll on Autumn?

“Summer will end soon enough, and childhood as well.”~ George R.R Martin ~ Game of Thrones

 

 

 

 

 

 

 

 

 

 

How To Survive Being Married to an Aspie

‘In one word, what’s it like to be married to an Aspie?’

OH: ‘Eventful’.

I can’t argue with that..

Next, I ask him to describe me in as many words as he can..

OH: ‘No chance!’

‘Er, why?’

OH: ‘Er, because you’ll kill me?’.

I do what I consider to be my ‘girly’ laugh (it isn’t) and tell him not to be a silly sausage but, to be fair, he is danger of ending up under the patio depending on what he says about me..

OH’s Description of Me

Passionate, Intense, Accurate, On edge, Careful, Opinionated, Knowledgeable, Fixed, Driven, Family.

Fair dos.. nothing in this list warrants a swift whack on the back of the head with the garden spade. However, I know how psycho I can be so I thrust the paper at him again..

‘I’ll bury you under the patio IF you’re not 100% honest about my crappy bits.’

OH: ‘I’ll need a bigger piece of paper then’.

I know from his face that he isn’t being literal and that he is, in fact, taking the piss..

A few minutes later, he gives me the additional words..

OH’s Description of Me Continued..

Impatient, Relentless, Opinionated, Unmoving, Indecisiveness, Moody.

I can’t argue with any of these either, though he does say opinionated twice.

‘Oi, Div, you’ve written opinionated down twice!’

He pipes up, ‘Oh yeah, you’re repetitive as well’.

So there you have it.

Straight from the horses gob.

I will be honest here and say that, by rights, I should live ALONE somewhere remote (but with WiFi) because I’m not good at the social stuff. I also like my own space and struggle having to share it. In addition to this, I go through the entire mood spectrum in any given day. I can be happy (ish) but one word out of place will summon Grumpy, Psycho, Nutter, Stroppy, Flouncy, Cranky and Loon faster than you can sing Heigh-Ho.

OH literally doesn’t know where he is with me. I do his head in. Official. I think my indecisiveness is possibly the worst thing for him because when I am overwhelmed, I literally can’t make a decision between having coffee or tea.

‘Do you want tea or coffee?’

“STOPPPP, IT’S TOO HAAAAAARD” *has breakdown*

I’ve just been diagnosed but I’ve known I’m autistic for the last four years and OH married me with that knowledge. Despite my attempts at ‘normal’, he’s always known I’m a weird sod. YET HE DIDN’T RUN?

Being with an Aspie is hard work. My issues are severe at times and I’m a lot to handle at the best of times. I feel slightly guilty because when we met I was still very much trying to fit in (therefore not being me) but over the last five years it’s become a gradual process of being truer to myself. The menopause has played a part in that because I’m too sodding knackered to sustain that level of pretence anymore. I guess I’m lucky because I have an NT husband who admits he doesn’t understand me, yet still wants to be with me.

In the spirit of good will and all that, I’d like to pass on a few tips which may be helpful to NT partners both male and female.

Alone Time

Your Aspie may need a LOT of alone time. Let them bugger off to do their own thing or they’ll be, like, super cranky.

Obsessions

As much as their obsessions may bore the CRAP out of you, it’s a good idea to let them wax lyrical about them now and then. It’s worth it just to see their faces light up, no?

Patience

You’ll need SHIT LOADS.

Communication

Because I’m crap at verbal communication (and misunderstand things people say to me) we communicate via email when I need to get stuff off my chest. It’s a lot less stressful, believe me.

Learn about Aspergers

I cannot stress how important it is to understand your partner’s autism as best you can. Nobody is expecting you to know how they feel but it helps to understand why they do to certain things and what you can do to support them.

Your Needs

Tell your partner what you need from them. Don’t hint or expect them to read your mind. Write it down if you need to.

You Time

Make sure you do something for YOU. Something that takes you away from Planet Autism for a few hours every week. It’s important because living with someone who is autistic can be wonderful and exhausting in equal measure. Go whack some golf balls about or thrash something non-living. Whatever sorts your stress levels out, right?

Support

When in doubt, ask The National Autistic Society on 0808 800 4104.

Or there is The Aspergers Syndrome Foundation

Sensory Issues

Most Aspies have sensory issues. I am over-sensitive to almost everything but especially to smells. The overwhelming stench of B.O (not mine) at school, still haunts my nostrils 3o odd years later and I REFUSE to indulge in any kind of amorous activity in the morning because I can’t stand morning breath, mine included. It’s like tonguing a  haddock, no?

Slightly whiffy in NT world can be ‘OH MY GOD, WHAT IS THAT FARKING SMELL?! – whiffy in Asperger world. Similarly, overdoing the Paco Rabanne is a no-no. I never said this was gonna be easy, now did I?

Some Aspies can be hit and miss with personal hygiene. It can be a case of CBA or things like brushing teeth hurts due to sensitivity. Me? I can either turn myself prune by over-bathing or forget to bathe for a few days. When I eventually get a whiff of my own undercarriage, I frogmarch myself up to the bathroom and throw myself into the shower until I smell of coconuts.

It’s safe to say that life with an Aspie is never boring. Me? I think I need a NT partner to keep me from floating off into outer space. OH keeps me grounded, or as grounded as I can be.  Sometimes I wonder how he copes with an Aspie wife AND son but he manages it. His escapism is to ‘bust a cap’ in some drug lords arse on his online mafia game. It keeps him sane, innit?

I educate him about what it’s like to live on Planet Loon as best I can but I know he can never really understand what it’s like to be autistic, no more than I can ever really understand what it’s like to be ‘neurotypical’.

Maybe Aspies should wear a some kind of warning system which alerts their other halves when it’s safe to approach them and when they should run for the hills?

GREEN= You may approach me.

Means: I’m in a receptive mood so fill your boots.

AMBER= Approach with caution.

Means: I’m a bit cranky and it could go either way.

RED= DO NOT SPEAK TO ME. DO NOT TOUCH ME. DO NOT LOOK AT ME. DO NOT BREATHE IN MY DIRECTION!!! I’M KILLING YOU IN MY MIND ARRRGGGHHHHH

Means: I am in full-blown psycho/meltdown mode.  I may become mute or verbally vomit words that make no sense whatsoever. Go, save yourself.

Hope this helps. 🙂

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