Reasons I Hate Summer: Holidays

Holidays are all about unpredictability and unfamiliarity – two things that I don’t do well with because I’m autistic, innit. I’ve never got what all the fuss is about! There’s also the sensory issue of sand in EVERY crevice which turns bum (and flap) wiping into a hazardous experience, no?

Then there’s the flock of seagulls. Not the 80s pop group with questionable hair-dos. I mean beaky bastards that crap on your hair and steal your chips!

Give me your f **king chips!

Is it me, or are seagulls a lot more feisty than they used to be? Maybe they’ve watched too many Steven Seagull movies? Geddit?

Anyhoo, I remember childhood holidays – at least, I remember a few. I don’t think we went every year. That was probably because we couldn’t afford to or maybe I’ve blocked a few out? Of those that are etched into my memory, I remember the entire family cramming into musty-smelling caravans with daddy-long-legs the size of Brazil and being made to strip off on the beach as apparently it wasn’t socially acceptable to wear your coat? As any misfit will tell you – coats are not just an outer layer of clothing – they are armour and it matters not that it’s 30 degrees in the shade and every other kid is running around in swimsuits and shorts!

Then there was the stress of having to choose which Enid Blyton’s to pack into my little suitcase, because as Dad used to say, ‘It’s a car, not the bloody tardis!’

My misery was reflected in the photographs that flopped through the letterbox about a month later. Photographs of me scowling and me giving the thumbs down and me being a generally miserable tw@t. In contrast, there was Dad – smiling, laughing and working his arse off trying to cheer me up.

I’m sorry, Dad. You worked hard all year. You deserved a nice holiday. I wish I had made more of an effort. 😦

To be fair, my eldest brother ruined at least one holiday because he was a teenager and teenagers are by default – arseholes.

I NEVER WANTED TO COME ON THIS STUPID HOLIDAY! YOU’VE RUINED MY LIFE! I HATE YOU!

Once I became a parent myself, I understood the effort (and money) my parents had put into our holidays. My stress levels increased because being a parent means that you are responsible for others as well as yourself. Plus, it’s your job to make happy memories for your children. So I forced myself to ponce about on beaches with beach balls and stuff. Unfortuately, my performance anxiety came on holiday with me, so having a ‘fun’ game of cricket on the beach scored high on my shit-o-meter, especially when I fell over due to poor coordination!

If you’re my kind of autistic, you’re mostly you’re counting the hours until it’s time to go home.

I don’t enjoy holidays. I survive them.

One thing I do when I’m on holiday is to observe other people because they make holidaying look easy!

But there’s usually a drama or two and one year it involved a lifeguard diving into the swimming pool to rescue what turned out to be one of my kids!

There was me and the MIL partaking in a little poolside afternoon tea (might have been lager) while (then) husband was in the pool with the kids and somehow he managed to lose one. Of course, I was thankful that my little ‘Pwince’ had been rescued (and didn’t seem at all fazed by the experience) but it buggered the rest of the holiday up because, you know, people stare, point and say. ‘That’s them!‘.

Thankfully, it’s not always my family providing the drama..

One summer, when my eldest boys were younger, we went to one of those beaches you can park on. You just open the car-boot and unload your shit onto the sand. Fabulous, no? So, there I was, semi-relaxing in my chair. I had a classy plastic tumbler of warm cider and a racy Mills and Boon. (Blaze series). One of the kids was literally burying the other one in the sand. Textbook stuff. The alcohol had taken the edge off my anxiety. The weather was warm, but not hot. It was fairly pleasant.

My shit-o-meter was at a tolerable 3.

Then, a 4 x 4 rocks up, bringing with it a family of five and a dog. They also appeared to have brought their entire house with them – chairs, tables, parasols, wind-breakers, picnic, bats and balls – the works!

The woman got out of the car, stripped to her skimpy bikini and flopped onto a beach towel with a magazine. They had two younger kids (who were seconds away from killing each other) a psychotic dog and a Goth teenager who point-blank refused to get out of the car because the sun was out and they wanted to avoid exploding into a million bats. Obviously!

4 X 4 Man started out by carefully positioning stuff and each time he asked for some help with getting stuff out of the car, his family ignored him. Within fifteen minutes he was ramming things into the sand and beating the living crap out of the wind-breaker pegs with his beast of a mallet. (NOT a euphemism)

It was like watching David Banner turn into the Hulk.

As I recall, the straw that broke the camels back was when one of his kids kicked a ball and it hit him in the face.

4 X 4 man’s face went turned a funny colour.

Then, he completely and utterly lost it!

I’VE HAVE ENOUGH OF THIS SHIIIIIITT!

The kids went silent.

Goth Teen rolled the window up.

4 x 4 Man’s Mrs looked up from Catherine Zeta’s arse.

The dog started to bury itself.

4 X 4 Man jumped up Basil Fawlty style and started throwing everything into the back of the car – his language as colourful as his face. Five minutes (and numerous ‘SHITS later) he and his family were wheel-spinning across the sand towards the exit.

Wish You Were Here. Not.

You see, holidays are not all smiling faces and Beach Boys on the iPod.

My dream holiday would be me locked in a library for a week with a vending machine, a kettle and a huge box of teabags!

My experience in Amsterdam is that cyclists ride where the hell they like and aim in a state of rage at all pedestrians while ringing their bell loudly, the concept of avoiding people being foreign to them.

My dream holiday would be a) a ticket to Amsterdam b) immunity from prosecution and c) a baseball bat.”~ Terry Pratchett

Autism: The Pretender

I’ve always known I am different, but for most of my life I haven’t known why.

I’ve had to suppress the real me and try to be like everyone else in order to try and fit in.

Masking. Mimicking. Copying. Pretending. Camouflaging. Whatever you call it – it all amounts to the same thing: Survival.

The cost of trying to fit in is high as many autistic people succumb to physical and mental exhaustion at some point in their lives. Like me. I burned out at 46 years of age.

The moment we leave the security of our homes we become somebody else in order to survive.

We are performers.

So much for autistic people not being able to act, eh?

As well as mimicking my peers, I took inspiration from characters in books and TV. Sometimes it was hard to know where the characters ended and I began. I remember asking my mirror reflection, ‘Who are you?’

Forty years later, I was diagnosed autistic.

Finally. I knew who I was.

Make-up has always been a tool in my ‘how to survive life’ box. Like clowns who hide their true identity behind over-sized clothes and painted on smiles, I tried to hide my ‘weirdness’ behind eye-liner and a layer of foundation thick enough to plaster walls. I’d seen how make-up changed my mother’s face so I experimented on my own and suddenly I didn’t look like me anymore, and if I didn’t look like me, then surely it would be easier to pass off being like all the other girls and, just maybe, they’d like me?

Er, no.

I wore eye-liner at first, but Dad went paternal on me and made me sponge it off. He didn’t understand my reasons for wearing it. How could he? He was a ‘man’s man’ and he just wanted me to stay a little girl as long as possible. It’s understandable, I guess.

Girls my age were wearing make-up – the difference with me was that make-up put a barrier between me and them – at the same time allowing me to blend in a little better. It was psychological because in reality I was still different. I just looked more feminine..

“My dad used to say makeup was a shallow girl’s sport, but it’s not. It’s armor.”~ Courtney Summers – All The Rage

For me, make-up wasn’t about beauty or fashion. It was about protection. Just as a riot cop would never go into an affray without their helmet on, I would never go out without my ‘mask’ on because I would feel vulnerable and exposed.

It was about pretence.

“Costumes and makeup play an important role in the drama, character creation.”

I have reinvented myself more times than Madonna, only with less success. And money.

Is it any wonder I burned out?

Since my diagnosis there have been changes. I feel different. Lighter. Less tolerant of people’s crap. I’ve found that the word, ‘no’ comes a lot easier these days.

I’m a long way from being make-up free as some habits are hard to break. Plus, I look bloody horrifying without it, but the mask is slowly falling and hopefully one day I will wear make-up simply because I want to – not because I need to.

So, what’s changed?

I accept myself for who I am. Also, I’m knackered from decades of trying to hide who I am in order to fit in and for what?

I GOT BULLIED ANYWAY.

Bullied. Ostracized . Whatever. It’s basically human beings exploiting vulnerability instead of offering protection and support.

I’d hazard a guess that most autistic people have encountered bullies at some point in their lives?

Bullies are cowards. Bullies are not stupid enough to abuse people bigger or stronger than themselves. They dominate those who are different in order to boost their own self-esteem and there lies the problem: Bullies actually have low self-esteem.

While I am new to knowing I’m autistic – I have always been autistic and I’ve been feeling resentful towards the people who have let me down over my life. However, resentment will only harm me, not them. That said, I feel more in control of my life than I have ever been. This is why the mask is starting to fall because I no longer need to hide. For what’s left of my life, I will embrace being autistic because it’s who I am. Some people say their autism will never define them but I don’t feel that way. If I wasn’t autistic, I wouldn’t be me.

Being autistic explains everything. Every moment of my life. People think I struggle because I’m autistic, but that’s not true. I struggle with an overwhelming (and confusing) world and I struggle with people.

People are a major problem.

I’ve floundered about from one self-help book to another trying to ‘find’ myself and only when I had my third child did I finally get my answer because he was diagnosed autistic. I have so much to thank him for because without him I would still be struggling with my identity. I’m not sorry that I’ve passed my autistic genes onto him because he’s the happiest little boy I know. He does NOT suffer. He’s NOT a burden. He requires NO CURE. However, I’m am sorry that the world still has a long way to go when it comes to understanding him.

Not so long ago, the school asked him to name things he liked about himself and do you know what my beautiful autistic son said?

“I LIKE BEING ME.”

Will I ever be able to say that about myself?

Lets just say that I’m working on it. Yesterday, I left off the eye-liner AND eye-shadow and I went out into the world. Maybe to most women, that isn’t a big deal, but to me it’s HUMONGOUS because it means that the mask is slowly coming off.

I’m also growing my hair-dye out. This is a challenging process as I need things to be visually ‘right’ and the mad badger look isn’t exactly flattering. However, I choose to think of it as a transformation from my old (and confused self) to who I am now and with each inch of silver hair, I can see the real me emerging. Like a butterfly, no?

Sounds wanky, but it stops me from reaching for the box of hair dye that’s in the cupboard..

For most of my life, I have been a pretender – always trying to be someone else because I thought that I wasn’t good enough.

I AM good enough.

I always have been.

Wanting to be someone else is a waste of who you are ~ Kurt Cobain

Image Via Pixabay

 

 

 

 

 

 

 

 

 

 

 

Back in Time: The 1980s

We had it all in the 80s..

Goodish music, cool films, strikes, threats of nuclear war, creepy DJs and legwarmers.

It was also one of those rare occasions when we won the Eurovision.

What? No! It had NOTHING to do with skirts coming off!

A lot has changed in the last 38 years since the start of that decade. Technology has gone STRATOSPHERIC and I have no idea what’s happening anymore..

So, how about a few comparisons between then and now?

TV

Now. There are about, ooh, a million TV channels to choose from? Yet you can still spend half an hour flicking through to find there is NOTHING on. I literally spent AGES flicking through all the channels last night and I ended up watching Fawlty Towers which was made sometime during the middle-ages. ‘Flowery Twats’ may be un-pc these days but it’s still hilariously funny.

Basil to his car: Start, you vicious bastard. Oh my God. I’m warning you, if you don’t start… I’ll count to three. 1, 2, 3, right, that does it. I’m going to give you a damn good thrashing.

They really don’t make them as good as this anymore..

Then. We had THREE channels at the start of the 80s. BBC One. BBC Two and ITV. Channel Four was launched in 1982 so that made a grand total of FOUR channels to choose from. Channel Four was a God send for us teenagers with programmes like The Tube and Brookside. I mean, who can forget ‘Debbie and Damon’? De Romeo and Juliet of der Pewl, eh?

‘Come here boy! It’s been five minutes since I gave somebody a damn good thrashing!’

DISCIPLINE

NOW. “Oh yeah? What are you going to do about it, Sir. I’ll have you arrested, Sir. You’ll be somebody’s bitch in prison, Sir!”

Discipline in secondary school consists of after-school detentions, confiscations, isolation and exclusion. When it became illegal to thrash kids, teachers had to get creative – not to mention medicated. However, it’s my understanding that teachers still have the right to use necessary force pupils in certain situations like if they are going to harm themselves or others?

THEN. In my day you got thrashed with a big fuck off stick and I’ve seen numerous blackboard rubbers hurtling across classrooms aimed at somebody’s head. It’s a wonder there weren’t fatalities. Maybe there were? Come to think of it, pupils were prone to disappearing from time to time. Was it truancy? Or were they concussed in A & E?

The glory years of corporal punishment came to an end in 1987 (two years after I left) though private schools carried on thrashing until 1999. In this instance, I think that 2018 wins because there should never have been a place in society for hitting children.

NUCLEAR WAR

NOW. There’s probably have a game about it on X Box featuring zombies. Also, President Trump likes to have ‘my nukes are bigger than yours’ competitions with anybody who takes the piss out of his hair/face/tan/hands/leadership.

I’d say this gives some cause for concern..

THEN. In 1983 there were two close calls. ACTUAL danger of ANNIHILATION due to a tiff between the Russia and America. A generation of kids and their parents properly shat themselves worrying over this. Parents were stock piling tins of beans so in the event of nuclear war we could fart ourselves into comas. Thankfully it didn’t happen but it gave Frankie Goes To Hollywood some inspiration for their number one hit, Two Tribes.

Remember this?

“The air attack warning sounds like
This is the sound.

When you hear the air attack warning
You and your family must take cover.”

Magzilla
19 September 1983

PSYCHOTIC FEMALE PRIME MINISTERS

NOW. People think Theresa May is bad?

THEN. She’s aint a patch on our pearl wearing overlord!

Margaret Thatcher (or “that woman” as my Labourite father called her) ruled as PM throughout the entirety of the 80s. This was the woman who a few years earlier (as Secretary of State for Education) abolished free milk for schoolchildren. Also, she and her popular (not) Poll Tax was responsible for the worst riots in Britain. Thatcher was possibly one of the most hated women ever. Certainly wasn’t popular in our house. In my opinion, Thatcher makes Theresa May look like Jar Jar Binks – only in leopard print kitten heels.

LEGO

NOW. Parents have to take out a second mortgage so their kid can have the Star Wars Millennium Falcon? I am STAGGERED at the price of Lego these days! I want to buy a kit, not the company!

THEN. One board, some bricks and you considered yourself lucky.

PHONES

Now. I’ve yet to clap eyes on a young person who isn’t attached to their mobile phone via an umbilical cord. You see them slumped over their phones in McDonald’s – Diet Coke in one hand – mobile phone in the other.

ALL of them on their phones.

NOBODY speaking.

Are they all sat texting each other?

It’s possible.

Then. While mobile phones existed in the 80s – they were the size of a shopping trolley and cost a fortune so us peasants had to make do with landline phones or public phone-boxes. You know, the red ones that reeked of fags and wee?

‘Blocking’ was when irate parents fixed an actual lock on the phone after receiving a bill of EPIC proportions – £40 in 80s money and about £160 in today’s. This usually included a few months of being grounded. Early parole was usually granted because parents couldn’t cope with having stroppy teenagers under their feet being all hormonal and horrible.

MUSIC

Now. Auto-tuned, shit sampled crap with pornographic videos and lyrics that would give your nan a coronary.

Truffle butter? Do yourself a favour and don’t Google it.

You Googled it dintcha?

Certainly puts Madonna and her pointy bra into place, eh?

Then. Sexuality has played a part in music for decades. Elvis was thrusting his pelvis at teenage girls in the 50s and in those days it was shocking. In 1978 Olivia Newton John was prim and proper as Sandy in Grease – three years later she was wanting to get ‘physical’ with blokes in a gym and I don’t think she meant half an hour on the treadmill! NOT that I knew what it was really about then because I used to pull on my legwarmers and go round the house singing..

You gotta know that you’re bringin’ out
The animal in me,
Lets get physical, physical, I wanna get physicaaaaaal…

Highly appropriate when you’re eleven years old, no?

THE SELFIE

Now. According to University of Florida’s Eunice Kim and colleagues in a September 2016 paper, there are 93 million selfie postings every day! That’s a LOT of duckface!

Then. Selfies aren’t a new creation, I mean, what’s the difference between a self-portrait and a selfie? It’s still a picture of YOURSELF, right? People have been using cameras to take picture of themselves for decades, it’s just that it’s so much easier now. In my day if you wanted to take a picture of yourself it involved much faffing and possible blindness when the flash went off in your face. Plus we were working with actual film so posing your way through a gazillion shots was NOT an option.

The 80s were my teenage years and I am part of the generation before technology went supersonic. Sadly, teens won’t ever experience that kind of simplicity again unless it’s part of some historical experiment to show how we used to live..

Fast forward 38 years and we live in a technological world where we communicate more with strangers than we do our own families. For autistic people like me, social media helps us to socialise because we are generally crap at it in person. That said, social media is good in small doses because it can easily become overwhelming. Life is too technological for our brains to cope with and as a result our mental health suffers and we have to take social media and, in my case – technology in general – breaks.

I have mixed emotions about the 1980s. Happy because it was the decade where I became a mother. Sad/angry/scarred because I was bullied by twats. Despite this – the frankly criminal fashions and Agagdoo do do push pineapple shake the tree – the 1980s was simplistic in comparison to today.

For me, THE best decade was the one that preceded it. Yes readers, hold onto your goddamn flares because next time I’ll be hauling you back to the 70s!

 

All images are public domain

Margaret Thatcher

Five Reasons I Hate Snow

 

1~ It’s cold.

Snow can be cold. The kind of cold that strikes through to the bones and freezes your snot. People say that children don’t feel the cold but they obviously never met the likes of me. Soggy mittens were never my idea of fun, people, hence I generally ‘enjoyed’ the snow from the warmth of the dining room window. That said, there have been moments in my menopausal journey where I would have given my right nip to be able to shove my face in a snowdrift..

2~ Aesthetics

There is something quite beautiful about fresh snowfall. I always marvel at the white blanket that magically transforms even the shittest of places.

Then humans and animals ruin it all.

First come the size 14 boot prints of the milkman.

Then, come the patches of yellow snow..

There is nothing remotely picturesque about a snow filled garden when you have dogs. Even less when it’s a small yard.

Then there is the joyous act of cleaning up after your four-legged friend has taken a dump in the snow..

Never had the pleasure of digging out a dog turd from 8 inches of snow?

You’ve never lived!

*snorts*

Lets not forget the lazy-arsed owners who genuinely believe that their dog’s excrement will dissolve in the snow so there’s no need to get that poo bag out eh?

What actually happens is that once the snow has melted – the pavements are smeared with poo which gets on everybody’s shoes and into their homes. Incidentally, these are the same breed of dog owners who believe that slinging shit bags into trees makes them inconspicuous.

*double snort*

3~ Driving

The problem with this country is that we are never prepared for wintry conditions. Our cars suddenly turn into Torvill and Dean – only less graceful.

To be fair, it’s the scariest thing to find yourself sliding down the road with absolutely no control whatsoever. I’ve had a few ‘squeaky bottom’ moments in my time so I avoid driving in the stuff whenever possible. However, I still get anxiety from watching other drivers sliding perilously close to my car as their back wheels have a mental breakdown.

Note to self: Next house must have a driveway.

4~ Snowballs (and other bodily parts)

No matter where you are or who you are with, at some point some idiot will throw compacted snow in your face and fall about laughing. For some reason, this is considered normal behaviour? But if I was to fast-spin a cricket ball at them, I’d be hand-cuffed and trundled off to the police cells.

*throws hands up in the air*

Then there are the snow-people complete with balls and boobs..

Nothing says Christmas quite like the sight of a snowman with a massive set of knackers on the front lawn, eh?

5~ It’s Slippy

As I’ve got older, there is another reason why I hate snow and ice.

It’s slippy.

The problem is that I have Osteopenia.

Osteopenia? Isn’t that a film about mods?

No, that’s Quadrophenia.

Osteopenia is the pre-curser to Osteoporosis. In other words – thinning bones. This means that I am more likely to break a bone should I fall over. Even a minor fall could have serious consequences. *serious face*

This is monumentally crap because I’m only 47 but it is what it is and all I can do is protect myself as much as I possibly can. So I fit contraptions to my boots (cleats) to stop me falling over and they do work. I am the ONLY parent on the school run who wears them. However, the well-being of my bones trumps dignity, no?

Note to self and other snow grip users: Do NOT attempt to walk on a tiled floor with your ‘cleats’ on. You’ll be on your arse faster than you can say Bolero!

Then there are the women who wear high heels when the pavements are blatantly icy. What’s more is that they manage to stay vertical! There’s me taking tentative steps despite the protection of my grips and they overtake me wearing stilettos as if they didn’t get the memo that it has snowed!

Witchcraft?

One theory is that the heels act like little ice-picks so maybe there is some method in this madness?

Even so. I think I’ll stick to my flat heeled boots and snow grips, ta very much. I’d rather look like Nanook of the North than end up sprawled on the pavement with a busted hip.

So, there are my five reasons why I hate snow.

Let it snow, let it snow, let it NOOOOOO!!!

I rode on a plane a couple years ago with Snow Patrol and didn’t know who the hell they were. They said they were big fans of mine and were playing Madison Square Garden. And they let me listen to one of their records on their iPod. I started to weep. ~ Neil Sedaka

 

 

The Teenager That Santa Forgot..

One year, Santa forgot me.

It’s true.

To be fair, I wasn’t a small child. I was a teenager.

So how did I come to be left off Santa’s list?

It was 1985. The year of the first successful heart transplant, Windows 1.0, The Golden Girls, The Breakfast Club, Live Aid, Take on Me and wearing your jacket sleeves rolled up Miami Vice style..

I was:

Fifteen. Teenager. Vegetarian. Knew Everything. Annoying.

I don’t remember how I came to be vegetarian, I just know that from 14 I declared myself a meat free zone. I lived on cheese, as 80s vegetarian options looked (and tasted) like Trill. Thank God for Linda McCartney, eh? Problem was, Mum never did understand the concept of vegetarianism. She gave me cheese in place of meat but then poured gravy over it which kind of defeated the object..

Maybe it was hormones combined with my undiagnosed autism (and copious amounts of cheese) but my teenage years were funked up and not in a good way..

I’d argue that black was white and I’d do it with a PASSION. Not content with being meat-free, I terrorised everybody else for being ‘murderers’. Dad took it all in his stride. He thought it was hilarious, but Mum was suffering from the menopause (or rather we were suffering from her menopause) and that particular year she and I clashed more times than a pair of cymbals.

By Christmas, I was struggling. Doing the social thing exhausted me mentally and physically. Going out took hours of stimulating myself with rock music and days of recovery time afterwards. Every time I convinced myself it would get easier but it never did because exposure only works with shyness and I wasn’t shy. I was autistic.

That year I’d asked ‘Santa’ for loads of records including The Cult’s ‘Love‘. I’d been borrowing my mate’s LP but she was pissed off with it spending more time on my record player than hers, so I was looking forward to getting my own copy. Gimme a whoop!

Christmas Eve

We were allowed to lie on the sofa watching films all day and the jar of Quality Street was ceremoniously opened. It was a good day and in the evening Mum challenged her inner Hyacinth Bucket (It’s Bouquet) and did a candlelight supper, which was V posh.

I felt very grown up.

I was even allowed wine. SHHHHHHHH!

Dad was on the Jack Daniels.

Brother was semi-pissed on Southern Comfort.

Mum was on the Stella (I’ll fight you and everyone else) Artois.

Everyone was happy.

Until it went tits up..

I don’t remember what I said, exactly. Maybe it was something about meat and murder again? I just know that I opened my big mouth and said something that had my mother slamming the louvered doors off their hinges as she flounced off into the kitchen.

In my confused mind, ONE thing registered.

SHIT!

Dad was rolling his eyeballs.

Brother was smirking at me.

Elvis was crooning Blue Christmas in the background.

My mother was turning the air blue in the kitchen in-between nose blowing sessions.

Tentatively, I inched my way into the war zone but took one look at her face and knew that grovelling was futile. She looked like Alice Cooper, only with red eyes. Even in my limited understanding of body language, I knew my best (and only) option was bugger off upstairs and leave Dad to smooth things over.

So I went to bed and endured one of the most miserable nights of my 15 year old life.

What, in the name of Ian Astbury, had I said to incur SUCH a reaction?

I still don’t know.

All I know is that I was forever being reprimanded for ‘showing off’.

Showing off?

Er, I’M AN INTROVERT?!

In hindsight, I know that the Christmas Eve fiasco wasn’t ALL down to me. I blame Stella Artois and lack of oestrogen. Stella because it always made my mother do the crying thing and lack of estrogen put her on a permanent hair-trigger. It could have just as easily been my dad or my brother who said something to upset her, eh?

But it wasn’t them.

It was me.

Mostly what got me into trouble were my meltdowns. I’d become overwhelmed, therefore out of control, and it was interpreted as me being a little shit – as so often is the case with autism.

Nobody knew I was autistic.

Not even me.

Christmas Day

I unenthusiastically wished Jesus a happy birthday and prayed that he’d put in a good word with my mother overnight and she’d forgiven me for “ruining Christmas”. I lay in my miserable pit until I heard sounds of life downstairs, then slowly made my way down into the kitchen where Mum was perched on her stool puffing away on a Silk Cut. She narrowed her eyes at me. This look meant, ‘Approach me NOT. I’m still pissed off with you!’.

I slunk into the living room..

There, lit up in all it’s magnificence was our faux Christmas tree and underneath it were three piles of presents.

One for my brother.

One for my dad.

The third pile was my mother’s.

FUCK!

Didn’t say fuck – obvs -my life was hanging in the balance as it was.

For the first time in my existence, Santa had forgotten me.

I’D MADE THE NAUGHTY LIST.

THE SHAME!

Mum looked weird. Sort of angry and sad at the same time and that’s quite a hard one to pull off!

Brother was still smirking. That litle shit positively basked in my misery!

Tears slid down my face.

I don’t think I’ve ever felt so sorry for myself in all my life.

Dad couldn’t take it anymore. He looked at Mum and said, “You’ve made your point Flo. Come on now. It’s Christmas”

Mum snorted and flip- flopped upstairs in her new mule slippers.

A few minutes later she appeared with my presents.

She went from angry to misty eyed in a matter of seconds and hugged me so hard I thought she’d busted my lung.

“And let that be a lesson to you, Madam!”

Despite having no literally NO idea what this lesson was supposed to be, I chose to keep my trap shut.

Maybe that was the lesson?

Ordeal over, I started ripping into my pressies with the finesse of a three year old on E numbers.

My first gift?

It was Love.

When I tore off the wrapping paper that Christmas morning in 1985, I had no idea that 32 years later, the lyrics to the title song would have such significance to my very existence on this planet.

I guess you could say that I’ve spent most of my life in the ‘wrong hole’?

Now don’t go and ruin this moment by thinking rude thoughts about holes? *serious face*

I mean ‘wrong hole’ as in trying to be neurotypical.

Spent a long time in this hole
Spent a long time in the wrong hole

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Spontaneity Hurts.

Say yes, and you’ll figure it afterwards ~ Tina Fey

Doesn’t work that way for some people, Tina.

It certainly doesn’t work that way for me.

Sometimes it will appear that I am being spontaneous, but the truth is that I will have been thinking about something in my head long before I actually say, ‘Shall we do this today?’ However, this can only apply to me and OH as The Boy needs time to adjust to any changes because he is autistic too.

One problem I’ve always had is having to cope with other people’s spontaneity – such as those who turn up without notice. I’ve had decades of people just turning up unannounced. There have been countless times when I’ve hidden upstairs or in the kitchen to avoid answering the door..

As part of my diagnosis my ex husband wrote a letter about me as, at that point, he’d lived with me the longest. He referenced how I used to do these things and how at the time he thought I was being moody or rude. He noted that every time the door went or the phone rang, I was suddenly elsewhere..

My parents never turned up unannounced. I guess this was because my mother also struggled with unannounced visitors. My mother-in-law, bless her, was different. She was full on neurotypical and as old fashioned as they came. I know without a doubt that she loved me, but I also know that she didn’t understand me. She’d often ask her son why I was so moody, only I wasn’t being ‘moody’. I was struggling to process the change to routine.

In the early years of my first marriage, I was practically a hermit. I struggled with everything that most people do without thinking. Even fetching the milk in was stressful because there was a chance that one of the neighbours would see me and I’d have to speak to or ignore them. It was often the latter. Sometimes because it was easier. Sometimes because the words wouldn’t come out. Hence, I got myself a reputation for being ‘weird’ or ‘stuck up’. I’ve waited hours for neighbours to go in just so I could walk up the street. On especially anxious days, I have cancelled appointments rather than walk past people in my street. Sounds ridiculous, I know, but it’s true.

My mother-in-law had set days where she would come to ours. The routine worked for me. However, sometimes she’d just turn up when I was on my own. She’d peer in through the living room window and rap on the glass. I loved this woman so much but my heart would sink, not because I didn’t want her, but because I wasn’t prepared for her. There was no time to get my head around it and I had no choice but to let her in because no matter how muddled my head was, I would never have left an elderly lady on the doorstep.

A lot of people like to be spontaneous but I’d hazard a guess that the majority who do are neurotypical.

Take Christmas, for example..

Every year, I give OH a list of what I want for Christmas (almost always books) and he always says, ‘We’ll see’. On hearing those words, I become anxious. He has this thing where he likes to ‘keep me guessing’. It’s utterly NT and it drives me FUCKING NUTS!

Every year, I tell him, ‘I don’t like surprises. Please just get me what I’ve asked for’.

Every year he says, ‘We’ll see’.

I’d hoped that my DX would change this and he would understand that surprises stress me, even nice ones.

Last week, I told him that I’d give him my list of books and he replied that I’d be getting something else as well because it made him happy to surprise me.

What’s more important? The pleasure of the giver? Or the distress of the receiver?

I can’t help how I am. I can’t adapt. No matter what I do, I will ALWAYS react negatively to spontaneity.

I get that there has to be compromise in any relationship, let alone a neurotypical/autistic one, but sometimes compromise isn’t possible. In this situation there can be no positive compromise. It can only be that OH does as I ask him or I try and cope with the anxiety in order to make him happy.

An example of spontaneity malfunction from my childhood..

We’d just moved and my life had been turned upside down. That summer, I turned 11 and my mother decided that I was old enough to be sent on errands, whereas before, I’d always gone with my brother. One day she told me to go to the local shop for her. It was a bad day anxiety wise and I had no confidence at all. I reacted badly. However, my mother interpreted my behaviour as being normal for a girl my age. Except that I wasn’t being rude. Or lazy. I was overwhelmed.

How can a trip round to the local shop overwhelm you?

Here’s how.

The request was spontaneous. There was no time for me to process or plan. Mum wanted something from the shop and she wanted it there and then.

The only route to the shop was along a busy main road where the traffic, at the best of times, was loud and unrelenting. Part of pavement narrowed with railings on the roadside and overgrown bushes on the other. It was claustrophobic and forced you into having communicate when people allowed you past or when they thanked you for allowing them past because for all my problems, I have always practiced good manners whenever possible.

The shop itself was half post-office, half grocery shop and it was always busy after around 10am. Mum sent me round at dinnertime – one of it’s busiest times.

What happens to my brain when I’m stressed is that it goes blank. I struggle to process and retain information. I remember standing in the shop with sweat literally pouring out of me – staring at what my mother had written on the piece of paper..

I was looking but I couldn’t see anything..

The noise was deafening. That, combined with the smells of cooked meats and that general grocery shop smell was an assault on my senses. The ‘normal’ thing to have done would have been to ask someone, but that meant communicating and it was beyond my capability at that moment in time. In the end, I walked out of the shop with nothing and went back home feeling useless. It was a feeling I would become familiar with as the years went on. It really bothered me that I couldn’t do the spontaneous thing without my brain malfunctioning. I need to plan. I need to know where everything is, right down to the toilets. I need trial runs to unfamiliar places. I’ve done this with holidays. It’s a part of my autism that I wish I didn’t have but I also know it’s a part of me that will never change.

Spontaneity doesn’t make me feel ‘alive’ like it does with most people. It freaks me out and fucks me up.

Since being formally diagnosed as autistic, a lot of the guilt has left me. How can I beat myself up over something that’s beyond my control? Nor do I feel the need to apologise anymore. I can try and educate people but I can’t make them understand that spontaneity hurts.

  I might say yes IF I can figure it out beforehand ~ Me

 

 

 

 

 

 

 

 

 

 

 

Christmas and the Autistic Child

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Most children like Christmas right? For many on the autistic spectrum, Christmas is a stressful time of year. The inevitable changes to routine are enough to send some children spiralling into one meltdown after another..

Same for autistic parents.

The Boy’s anxiety has been climbing for weeks. As soon as things change at school his behaviour deteriorates. He’s on a VERY short fuse and the simplest of requests, like taking his coat off, has him throwing stuff and stomping off upstairs screaming that he wants to DIE. He’s eight going on thirteen only this is him BEFORE the hormones kick in!

Can you imagine when they do?

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Trip hazard? Or my son when the testosterone kicks in?

The Boy’s need for me is ever greater as he battles with a brain that struggles to cope with Christmas. He likes Christmas but struggles with it just as he struggles with a lot of other things he likes.

There are no decorations up at our house yet as we’re trying to keep stimulus to a minimum and my anxiety is so bad that the mere thought of them makes my heart race. The control freak within me struggles to allow other people to do it and in the past when I have let the kids, er, ‘help’, I have stood there fighting the urge to rugby tackle them to the floor in order to prise the baubles from their clammy little hands. *whispers* I re-did it once they were in bed. It’s something I don’t like about myself but it’s a pathological need for certain things to be aesthetically pleasing in my eyes.

When it comes to visiting Santa, forget it. It’s a sensory nightmare.

Queuing = Hell.

Noise = Hell.

Migraine inducing fairy lights = Hell

Sitting on Santa’s knee. Do they still do that? = Hell.

I hated it as a child. The Boy managed one minute in a queue once and we had to leave. Do your child and yourselves a favour and go to an autism friendly session where the visits are timed, you can take your own present. Visiting Santa should be a pleasant experience for every child, no?

There are things you can do as a non-deranged parent to make things a little easier for your autistic child.

Decorations

  • You can involve your child in buying decorations or letting them help you to put them up.
  • Introduce the decorations gradually. It’s probably best not to have it looking like Santa’s Grotto if your child gets easily overstimulated.
  • Give some thought to your Christmas lights. If your child is very sensitive, a migraine inducing strobe effect probably isn’t the best idea. Static or gentle fade in and fade out lights will be more appropriate.
  • Use countdowns for putting the decorations up and taking them down.
  • Use social stories and visual calendars.

Visiting Santa

  • Check your local papers/social media for autistic friendly Santa-sessions

Presents

  • Mountains of presents will overwhelm most autistic children so it’s best to limit how many they get or don’t put them all out on Christmas Day.
  • If your child has sensory issues pay attention to the paper you use to wrap the presents with.
  • If unwrapping make them anxious then don’t wrap them at all.
  • Place a familiar toy next to the new presents.
  • Try some gentle classical Christmas music in the background especially if classical soothes them normally.

Family

Don’t feel under pressure from your family. If you know your child can’t cope with a big family get together on Christmas Day, then don’t be afraid to tell them to sod off – albeit politely. Your child’s well-being has to come before Great Aunt Ada parking her arse on your sofa all day scoffing the Quality Street eh? Life is different when you have an autistic child. If people get it, great. If they don’t, educate them until they do get it. Maybe give them a book on understanding autism as a Christmas present?

Familiarity

Christmas Day is just the three of us. There are no visitors. There is no Christmas dinner with party hats and other such paraphernalia. The Boy has his usual food and bedtime is the usual time with the usual ritual of a story and his Classic FM.

The Rules are that there are NO rules when it comes to autism. Each person is different. Some love Christmas, some don’t. All autistic people are affected but not necessarily in a negative way.

Me? I find Christmas stressful BUT it’s also the season of fairy lights and I BLOODY LOVE fairy lights!!

As a child I used to lie on the floor under the Christmas tree and stare at them for hours on end. My Nan, having downed a few brandies, would say, “You’re a funny little girl” I used to wonder why she was calling me funny when I hadn’t said or done anything funny. Now I know she was calling me weird. MY OWN GRANDMOTHER!!

Christmas is difficult for me in ways which most people wouldn’t understand. I’m not a Christmas hater – it’s just that there is too much going on and that sends my anxiety orbital. Social media is crammed with Christmas. TV is bombarding us with adverts/mini-movies for the hard sell and it gives me a headache. If I could cherry pick bits of Christmas it would be lights, carols and the act of giving. You can keep the crowds, commercialism and my pet peeve, ‘Secret Santa’.

I don’t suppose it helps matters that my father decided to shuffle off his mortal coil on a Christmas Day. To lose someone you love on any day of the year is bad enough but to lose them on Christmas Day is epically crap. The image of Dad’s lifeless body while Noddy Holder screeched “IT’S CHRISSSSSSSTMAAAAAAAAAAAAAAAS” is forever seared into my memory and while I fight to bring forward the memories where he was the life and soul of Christmas, this one always wins.

As regards The Boy, we try to keep things as close to normal as is possible. Whatever ‘normal’ is.

Header Image via Creative Commons

 

 

Among Angels..

According to a recent (ish) poll, one in ten people in the UK believe in angels.

Christmas is hurtling towards us an alarming rate so it seems apt to do one or two posts about angels.

There is a plethora of information about angels but perhaps one of the best advocates for the winged-ones is Lorna Byrne.

I’ve always been in two minds whether or not Lorna is certifiably insane? I mean, this lady has conversations with angels on a daily basis and has been seeing them since she was a baby. Yet she appears to be as sane as you or I.

Well you, anyway..

Lorna sees angels as physically as she sees everybody else and is of the opinion that everybody has at least one angel with them at all times. At this point, people usually ask, ‘Well, if that’s true, how come people get hurt or get ill? Why don’t their angels save them?’

Other people ask where their ‘car parking’ angel is when they need them?

“I drove round the Tesco car-park THREE SODDING TIMES. Where was my effing angel?!!”

Having a doze?

Saving a beached whale?

How the heck am I supposed to know?!

What I do know is that for every atrocity that happens – there some people who ‘miraculously survive’ and those who die horribly.

This is what I struggle with when it comes to the concept of angels.

One answer is that angels do appear to intervene where there is danger but not in every instance. It doesn’t seem fair that some people are saved and not others. Are some lives worth more than others? I don’t think so, yet this is how life is. The problem is that we don’t understand how all this works. People just assume that angels don’t exist for the same reason that some people reject the idea of God – because people suffer.

I have had a few ‘near misses’ in my time and when I say near miss, I mean that I have NO idea how I came out of these things alive..

The first incident was when an old (and extremely heavy) door fell on top of me when I was about four years old. I was rooting about in that forbidden area (the garage) and it fell on top of me. My parents couldn’t understand why I wasn’t dead or at the very least, a cabbage. Yet all I suffered was a small scratch on my nose.

Another incident was when I was driving home from work one day. I was doing 50 mph and an articulated lorry pulled out on me. I braked but my car kept on going, skidding onto the wrong side of the road.

Miraculously, there were no cars coming in the other direction.

It could have been a LOT worse.

It should have been a lot worse because it happened during the rush hour on a road that junctioned onto the M6 motorway – one of the busiest in the country.

All this happened in a matter of seconds yet I remember three things.

One – Time slowed right down.

Two – My life flashed before me.

Third – I felt protected.

Those were occasions where, by rights, I should have been seriously injured at least. Maybe it was just my good luck. Or maybe someone was looking out for me?

On another occasion, my eldest son (then about 16) came out of the local shop and stepped off the pavement into the road. He later told me, “I felt someone pull me roughly back onto the pavement. I looked around but there was NOBODY there. I thought it was one of my mates playing silly buggers. At that moment, a car came speeding round the corner. Had I have carried on across the road, the car would have hit me for sure”.

I also had a bizarre experience one day when my car broke down. These were the days before mobile phones and I had my elderly mother in law with me and a boot full of shopping. The place where I broke down was quite a distance from the nearest working phone-box and there were no houses either. My dilemma was that I had to leave my MIL in the car on her own while I went to get help as there was no way she could come with me. Just as I was starting to panic, a car drew in behind us and a man came to the window asking if I needed help. I could have kissed him! I explained the situation and he offered us (and the shopping) a lift back to MILs house.

The man looked to be in his 60s and had the kindest (and bluest) eyes I’d ever seen and I instinctively felt safe, as if he was someone I’d known all my life. Normally, I am suspicious of people.

He drove us to MILS house and helped me to carry the shopping in..

Nothing strange thus far but here’s where it gets funky…

We’d taken the last bags inside the house and I turned to thank him and offer him a cuppa but he’d gone.

I looked outside and his car was gone too. I know this sounds unbelievable but there simply wasn’t the time for the bloke to put the shopping bag down, walk out of the door, get into his car, drive off, without me seeing him.

I know what you’re thinking but no, he hadn’t nicked anything and SHAME ON YOU FOR THINKING IT!

What happened was impossible.

Some time later, I read an article about angels which led me to do some extensive research of my own and a few details consistently cropped up in people’s accounts:

These ‘angels’ appeared out of nowhere when people desperately needed help.

  • They generally had kind (and very blue) eyes.
  • There was a sense of peaceful and calming energy.
  • They buggered off quicker than is humanly possible.

So angels drive do they?

Apparently so.

My question is how do they get around the tax and insurance?

Why do they appear as humans then? Why not just appear in all their winged glory?

Well, I for one would have shit myself had a seven foot bird person revealed themselves to me in front of my Peugeot. As for my mother-in-law, she’d already had one heart attack. The shock would have finished her off, defo.

Even if you think my story is about as believable as Wayne Rooney’s weave, there is no denying the mountain of evidence to support the existence of these beings known as angels.

Personally, I don’t believe it’s an angel’s job to save every person on the planet. Granted, it would be great if only the ancient among us died after long and gloriously happy lives but the reality is that the planet would be vastly overcrowded and we would become extinct.

Maybe angels do warn us but it’s our free will to heed or ignore the whispers?

Maybe it’s gut instinct not to travel on a certain road, or catch a certain train?

Or maybe it’s a whisper from an angel?

I see an angel’s job as one who comforts and guides. Who’s to say that when bad things happen they are not comforting someone to the very end? So maybe they can’t always save lives but comforting someone in their final minutes? That’s a very special thing, no?

One of the problems is that we don’t understand life. We don’t understand why good people die young and utter twats live to ripe old ages. If you believe that everything is chance and life is meaningless, then you have no problem. For those of us who don’t fit with that concept – there is confusion.

That said, I think that when we die, we will understand pain and suffering.

We will understand the whole damn thing.

It’s just that it’s incomprehensible to us in human form.

The other problem is some of us struggle with things that can’t be scientifically measured. There is no proof, therefore it doesn’t exist. Experience convinces you. While there is no definitive proof that angels exist, there is an abundance of evidence and in any court of law evidence stands for something.

I like Lorna’s Byrne’s theory that our guardian angels are always with us. That said, I hope mine averts their eyes when I’m perched on the loo or in the shower because, well – dignity.

Do you believe in angels?

Some things are true whether you believe in them or not ~ Nicholas Cage

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

It’s The Freakiest Show..

My big brother was into the 1970s glam-rock scene, I mean, he had the platforms and everything.. He looked a div, but then what teenage boy didn’t look a div in the 70s?

For what’s it’s worth, I also looked a div – only I didn’t have any choice in the matter.

Anyway, it’s from rooting through his records that I came across the phenomenon that was David Bowie..

Being born in 1970 rendered me too young to appreciate the glam rock scene first time around. However, I didn’t have to wait too long because it made a comeback in the 80s with the likes of Def Leppard, Poison and Kiss – only with less glitter and more hair. Oh. And the flares were replaced by skin-tight, testicle-trapping jeans which of course helped them to reach those high notes..

WHOOOOOOOOO-YEAHHHHHHHHHHHH

Of all the records of the glam rock era, Life on Mars is my favourite.

Bowie labeled Life on Mars, “a sensitive young girl’s reaction to the media” and added, “I think she finds herself disappointed with reality… that although she’s living in the doldrums of reality, she’s being told that there’s a far greater life somewhere, and she’s bitterly disappointed that she doesn’t have access to it.”

I know how she feels..

Reality sucks. You spend nine months in the womb being prepared for your big entry into the world only to reach the age of five when you start school and your world turns phenomenally crap.

Yes, I know how that girl feels..

Life on Mars was released as a single in 1973. I was three years old and still wearing plastic pants. So it’s fair to say that while I no doubt heard it on the radio (or saw it on TOTP) I wasn’t into it until a few years later..

First, I fell in love with Mick Ronson’s orchestral arrangement because, lets face it, it’s EFFING AWESOME! Then came my obsession with the lyrics (also awesome) and all these years later, it STILL does things to me insides..

When it comes to the lyrics, the song is somewhat ambiguous but I identify with Bowie’s description because, like the girl, I am also at odds with reality. I see life as one big freak show.

Sailors fighting in the dance hall
Oh man, look at those cavemen go
It’s the freakiest show

Bowie started out ordinary enough, apart from his freaky eye, but Mrs Bowie knew that his image was a bit crap so she turned him into the spiky red awesomeness that was ‘Ziggy Stardust’. He made weird, cool, and all the misfits and weirdos whooped with joy and bought all his records. He was like something out of space – which was kind of the idea. Nobody knew what the fuck he was. Was he male, female or alien?

Bowie wasn’t my dad’s cup of tea, as I imagine was the case with a lot of other parents of the time. Dad’s nervous cough would kick in when Ziggy beamed up via the gogglebox during those early years but he settled down once Dave brought out Lets Dance and ‘that one he did with Jagger’, got the Dad stamp of approval too.

Bowie has been a constant in some form or other since Ziggy. I almost had a coronary when the TV series Life on Mars was screened in 2006. Great plot. The legend what is ‘The Gene Genie’ (Gene Hunt) and a cracking 1970s soundtrack, including Life on Mars which was used a LOT. What’s not to like?

For those of you unfamiliar with Life on Mars.. the plot is is that Sam Tyler has an accident in 2006 and wakes up in 1973 wearing flares and driving a Cortina. The tagline is, Am I mad, in a coma, or back in time? Whatever’s happened, it’s like I’ve landed on a different planet.

I just hope to God I never suffer a head trauma and wake up in 1983 wearing a ra-ra skirt and legwarmers!

So, if I had to choose ONE song to listen to before I die, it would be Life On Mars. I want my life force to ebb away to this song but knowing my luck, it will be Justin Bieber and I will die with my middle finger stuck up in mid-air.

There is something satisfyingly poetic about Mick Ronson’s melodic string arrangements to Life on Mars being the last piece of music I ever hear before I depart this shit-hole planet. I am the girl with the mousey hair, or at least I used to be before I started dyeing the crap out of it, and I very much want this to be my swansong. Family, take note.

Finally, a bit o’ trivia for you..

The string arrangement for Life on Mars was written in a TOILET.

Genius.

Dancing With Myself

 

I have memories of dancing around the living room as a child. Even though I was (and still am) disturbingly uncoordinated – the freedom of movement was liberating. It didn’t matter that I looked like a div because nobody could see me.

Thing is, I am profoundly affected by music. Sounds wanky? Fair enough. However, it is a scientific fact that humans are hardwired to respond to music. Music is important. I mean, can you imagine films without soundtracks? Imagine Renton legging it down the street in Trainspotting without Iggy Pop’s Lust For Life. Or how about Jaws without the ‘duuun dun duuun dun dun dun dun dun dun dun’? Of course not. Films would be shit without music.

Life would be shit without music.

The Notorious G.O.D once said, ‘Yo knuckle-dragging peeps, 55,000 years from now your ancestors will be stressed off their tits and up to their eyeballs in something called ‘debt’ but they will have Coldplay and Radiohead.

Music was always playing in our house so many of my memories are evoked by songs. For instance, when I hear Ella Fitzgerald, I see Mum standing in the kitchen – pinny on – preparing Sunday dinner and it’s like she’s still with me somehow..

Mum ~ Circa 1975

As a teenager I went to a disco on Wednesday and Sunday nights.

YOU?!

Yes. ME!

Discos are usually avoided like the plague by the socially and sensory challenged. However, it was one of those situations where being social was a necessary evil if I wanted to experience music at a volume that would give my parents coronaries. You get this, right?

The routine was that I’d wake up on Wednesday morning (dry heaving) and I’d talk myself out of going. Then I’d get home from school – play my music – and it would give me a confidence injection. So I’d spend three hours faffing with my hair and troweling the make-up on and in the end I would look as far removed from me as I could be. Think actress and stage, rather than girl and disco..

Discos also meant BOYS.

I educated myself on how to be a girl and do boy/girl stuff because I was interested in boys, I just knew I couldn’t be myself or they would leg it faster than their Adidas trainers could carry them.

My research came in the form of teen magazines but the stories annoyed me because they were all ‘Wendy stared dreamily at Lee but he didn’t know she even existed. How could she get him to notice her?’. After a few pages of cringeworthy crap, Wendy gets a makeover at her mate’s house and Lee suddenly acknowledges her existence by snogging her in a graffiti filled bus stop which smells like a urinal. The end.

All this seemed ridiculous to me but apparently this was what was expected of girls if they wanted to attract boys? I did manage to attract a few boys because I remember kissing a random teenage lad to The Power of Love – Frankie Goes To Hollywood’s version. I don’t even think I knew his name before I started attacking his tonsils. Another lad (WHO WORE WHITE SLIP-ON SHOES FFS) bought me a Coke and I snogged him as a way of thanks. Snogging didn’t involve talking, you see. I understand that other female Aspies might identify with this?

Music was a drug to me and I needed my weekly fix of this ‘sound experience’. That’s an experience of sound – not Scouse lingo.

I was a disco junkie.

Sort of.

Because it wasn’t about the socialising. Nor did I need alcohol (not that they served it anyway being an under 18s disco) because I got my high from the bass sound which vibrated in my body. The anomaly is that loud noise usually affects me adversely. I cover my ears if a police car goes past. Loud music though? TURN IT UP!

Perhaps it’s no surprise that I have to wear a hearing aid now?

Anyway, combined with the lights (which fascinated me) I’d have been in heaven if it wasn’t for the other humans. My perfect disco? Just me, the music and lights. You can bugger the DJ right off too. I’ll pick my own tunes. Maybe that’s what my heaven will be? My own personal discotheque and yes, I AM old enough to remember the word, ‘discotheque’.

Spear of Destiny’s Liberator (Indie Rock) was played with full strobe light effects and I’d stand there with my mouth hanging open as if a UFO had just landed in the middle of the dance floor. Another anomaly is that, normally, lights affect me – especially fluorescent – but I LOVED THE STROBE! Couldn’t cope with it now (migraines) but in those days it just hyped me up with a similar effect as when you used to give kids E numbers..

The other thing about Liberator was that on hearing the intro, people would literally skid onto the dance floor and start jumping up and down like lunatics. You didn’t dance to Liberator. You shrugged your shoulders aggressively or swung your handbag round your head like a lasso. Plus, being in close proximity to other people meant you were always bumping into someone, like when I bumped into an older girl and demolished her glass of Coke. WHOOPS! Her mates helpfully inquired whether or not she was going to kick my face in?

‘I’M GOING TO KNOCK YOU OUT, COW!’, the girl informed me (aggressively) before flicking me the V sign.

She was probably all frosted lipstick and no action but I wasn’t in the mood to find out, so I legged it to the toilets as fast as my 6″ sling-backs would allow me..

At the end of the night, saliva would be swapped along with phone numbers. The lights would go on and the bouncers would start herding us towards the exits. To me, it was always a massive anti-climax to see the room devoid of it’s magic because the reality was that the dance floor was strewn with broken glass and fag-ends and it looked crap. It was like going to bed with Sean Bean and waking up with Worzel Gummidge. 😦

Once I got married and had children – going to a disco became a rarity. As life put more pressures on me, I became more and more unable to cope with social situations of any kind, let alone discos. I couldn’t recreate those years where the music would override my issues, so I stopped going. Once I was on my own, I would draw the curtains, put a record on and dance, or at least, my interpretation of dancing. Why do you think I drew the curtains?

I don’t remember exactly when I stopped dancing. I just know that I did. And now my bones are buggered so throwing myself around the living room is no longer an option. Not with my arthritis, dears. However, music is (and always will be) in my soul and the day I am no longer moved by it will be the day that I go to that great disco in the sky where the music never ends and God is a DJ.

That’s a reference to a song, by the way.

Until then, as Shannon once said, “Let the music play”.

“Ah, music,” he said, wiping his eyes. “A magic beyond all we do here!” ~ Dumbledore ~ Harry Potter & The Philosophers Stone