Dear Anxiety..

Dear Anxiety,

Thanks for keeping me alive for 47 and 3/4 years. You’ve prevented me from doing idiotic things that could bring about my premature demise: such as overtaking on blind bends or not looking before I cross the road.

Haven’t always been so helpful though, have you?

Remember when I was a child and I worried about monsters coming to kill me in my sleep? My little heart would race and I’d feel sick. Sometimes I would be sick. Obviously, this thrilled my parents no end as cleaning vomit-spattered carpet is just what you want after a bottle (or two) of Blue Nun and a homemade curry on a Saturday night. But, fair dos, you’ve saved me from harm on numerous occasions..

Like when my dad failed to pick up from primary school and I decided to walk home myself. Only, I wasn’t allowed to walk home alone because there were two major roads to cross. One by the school and one outside my house. The latter being exceptionally busy. Lorries ploughed into garden walls (ours for one) and animals frequently got run over. That kind of busy. Unfortunately, one of the teachers saw fit to usher me out of the safety of the playground so I had no choice but to start walking towards home. I managed to cross the first road because there was a zebra crossing which I’d crossed a thousand times and I knew that cars would stop for me. Then I got to the busy road and I stood on the pavement for what seemed like hours, worrying over what to do. I could see into our living room window and hoped that my mum would happen to see me, but no such luck.

‘Go on! Just run across!

What if I get hit?

‘You’ve never crossed this road on your own before. There is no safe crossing here, you must ask for help’.

I went into the local shop and blurted out that I needed help crossing the road to the woman behind the counter, who was slicing some ham at the time. It stunk, but panic overrode my sensory issues. Without you, I would have chanced it and the consequences of that would have been deadly on two counts. One, I could have been flattened under a bus. Or lorry. Two, my mother would have killed my my dad, then buried him under the front lawn for not picking me up. Harsh, but she was well into her peri-menopausal stage by then and was prone to occasional flashes of insanity. I guess you could say you saved two lives that day?

The teacher got one hell of a rollocking from my irate mother who demanded to know what the ‘sodding hell’ he was doing letting an 8 year old child walk home alone when I told him I wasn’t allowed to. At least, I think I did? I definitely thought the words, but whether they translated from brain to mouth, is up for debate.

You did your job. You kept me safe. For that, you have my gratitude and respect. However, somewhere along the line you’ve overstepped the mark. You’ve completely taken over and I’m asking, no, I’m TELLING you to stop. You are with me 24/7, whether I’m in danger or not. It’s been this way for over six years now and with the greatest of respect, you really need to fark off now.

There is no danger in watching Mary Berry bake a cake, so why act as if there is? What’s she going to do? Come at me from inside the TV screen with a rolling pin and beat me to death? Or when a car door is shut three streets down, is it really necessary to respond with a full-on panic attack?

Why are your turning minor health issues, like headaches, into life-threatening diseases?

Your job is to keep me safe, but now I am scared of you. I am scared of how you make me feel, because you make me feel like I am going to die – especially in my dreams – which make The Texas Chainsaw Massacre look like The Muppets Take Manhattan.

I’m sick of feeling my heart race, for no apparent reason.

I’m sick of feeling sick!

Palpitations. Skipped heart beats. Clammy. Shivering. Shaking. Nausea. Tummy ache. Cold head. Tingles (and not nice ones). Tight chest. And a hundred and one other unpleasant symptoms that rage through my body at any given time.

Last, but definitely not least, that horrible feeling of foreboding just before all the shit kicks off. LIKE THE WORLD IS GOING TO END. Or my heart is going to stop and I cease to exist.

I’m a bit pissed off with it all now. Actually, I’m MEGA pissed off. So, I am taking back control of you because I want my life back. I still want you around, not that I really have any choice seeing as you are a primeval part of me (I’d quite like to stay alive), but you will work for me, not against me. Capiche?

I am getting all Godfathery on ‘yo big ol’ ass’ because you need to be put back in your place. Pegs, taking down and all that. My theory is that you took advantage of a hormone imbalance. You saw my oestrogen walking off into the sunset and thought to yourself. ‘I’m in here. This emotional idiot has no ‘balmy’ army to keep me in my place anymore. Lets cause some shit!’

Am I right?

Those rare moments when I feel relatively ‘normal’* are enough to trigger panic attacks because feeling ‘well’ is such an alien feeling to me now. Bizarre plot twist: It’s actually better for me to feel shit because it’s constant and familiar. *throws hands up in the air*

You’re like the boggart in Harry Potter – a shapeshifter feeding on my fears. So how about I use the Riddikulus spell on you? Because if I imagine you wearing a fluorescent green mankini and Compo wellies, you will look pretty damn ridiculous. I will laugh and you will shrink faster than a cheap burger on a barbie and ,eventually, you will return to your rightful place. Which, for your info, is in my BRAIN, not my entire being.

So, you are no longer anxiety. You are boggart or ‘bog’ for short because that word makes me laugh. Like when Mrs Trunchbull calls Bruce Bogtrotter ‘Bog’ in Matilda. Always makes me laugh. Just typing it makes me smile. See?

When you can behave yourself, you can have your title back again.

Regards, your human.

*Normal for me is when I don’t have something crappy going on in my body. Last noted phase of normality was 2008.

It all begins and ends in your mind. What you give power to has power over you, if you allow it.

Creative Commons Image Via Pixabay

 

 

 

Confessions of a Hypochondriac

Charles Darwin, Andy Warhol, Florence Nightingale all have something in common..

Ooh. What’s that? Intelligence? Creativity? Empathy? Fabulousness?

Well, all of those, but what I’m talking about is hypochondria.

A hypochondriac is someone who lives in fear of having a serious illness. This could even be despite medical tests never finding anything wrong. They may also have somatic symptom disorder known as illness anxiety disorder, health anxiety, or hypochondriasis.

I’ve written about my struggle with health anxiety before and I’m not ashamed to do so. The way I see it is this: The more we get mental illness out in the open, the more people can be helped, yes?

So if you’ve ever listed your aches and pains down in a diary or journal – you could be a hypochondriac.

Darwin, for instance, kept records of his own flatulence.

I like to think it read something like this..

Monday: Long. Rasping. Smells like something crawled into my colon and died.

Wednesday: Guffed. Put myself into a coma.

Saturday:  Woke up from coma & farted a 9.8 on the rectum scale.

Sunday: Attempted ‘danger fart’. Followed through. Mrs Darwin – NOT happy!

Darwin’s fart diary? That’s nowt. I kept records of my bowel movements. Yup, I lined the toilet with bog roll in order to inspect the contents of my own poo!

Then I wrote about my findings in my journal. *blush*

Note: A courtesy glance into the pan as you wipe your botty is NOT hypochondria. It’s normal. Advisable even. If there’s blood in your poo it could be an early sign of bowel cancer and early detection could save your life. We’ve all seen the Be Clear On Cancer ads, right?

Avoidance is probably worse than obsession because people ignore symptoms altogether, which was Andy Warhol’s story..

Warhol was a genius in his field, but he pathologically feared growing old and getting ill. He refused to go anywhere near hospitals and so he ignored a recurring gallbladder problem until the pain was bad enough to hospitalise him. Problem was, he’d left it too late.

Avoidance is a killer.

There is a midway between avoidance and obsession.

AWARENESS.

It’s normal to be aware of new symptoms and to seek help if problems persist, but I was doing went waaaaay beyond the realms of normality.

I compared my poo to the Bristol Shit Scale and one thing I learned from playing Miss Marple with my own crap is that EVERYTHING you ingest affects what comes out of your bottom. Even supplements!

P.S Calcium supplements can make your poo pale.

P.P.S They can also constipate you.

Pale bowel movements and hypochondria? What could possibly go wrong?!

DID YOU KNOW? Sweetcorn comes out appearing to have been undigested. Apparently it’s something to do with humans not being able to break down the cellulose husk? However, it is a good way of finding out how long the journey takes from food going in your mouth to it coming out the other end. In my case, sometimes the sweetcorn was outta there in a matter of hours. Sometimes it was festering for days..

Stress affects your digestion system. Fact. I varied from feeling nauseous and not being able to manage anything more than a dry cracker – to feeling ravenously hungry, even after a full meal.

When it comes to your bowels, stress can play havoc with them. Believe me! Some days I was crapping it up for Britain at 3am, whereas other days my poo got stuck in transit and I was stranded on the loo for what seemed like decades. One such day being when I, er, strained a bit and convinced myself I’d prolapsed my bowel.

I was on my own in the house – stranded in the bathroom with what felt like a grapefruit hanging out of my orifice.

I tentatively prodded the ‘mass’ with my finger.

As you do..

The only plausible explanation was that I’d forced my bowels out, right?

I texted OH: MY FUCKING BOWELS HAVE FALLEN OUT!

I rang the doctors and demanded to speak to my GP. Now, normally I avoid phone calls like Justin Bieber songs, but my fear of dying with my innards hanging out of my arse-hole overrode my phone phobia.

The jobsworth receptionist gave me the ‘You’ll have to make an appointment madam’ spiel, so I screamed at her that my bowels were hanging out of my bottom.

‘Ooh! Right. In that case, the doctor will phone you back as soon as possible.’

So my GP phoned back and listened as I hyperventilated in-between the words. My. Bowels. Have. Fallen. Out. Of. My. Bottom. He asked a few questions then said, ‘You’re constipated. I’m writing out a prescription for some Lactulose. Pick up in an hour’.

Lactulose? Why the fuck wasn’t I being taken to hospital to get my bowels shoved back up into their rightful place?

‘Wait, don’t you want to have a look up my bum?’

‘Well I can if you want me too, but from what you’ve described I’m 100% certain it’s constipation. You just need some stool softener.’

My GP obviously didn’t have a clue.

So I consulted another one.

Dr Google.

I can hear the sound of palms being slapped on faeces faces from here.

IDIOT! You type in constipation and two clicks later, you’re dead!!

Yes, I know, but fear overrides common sense. Also, you don’t need to make an appointment cos Doc Google is available 24/7.

Aside the usual cancer scaremongering, I was treated to some wonderful anecdotes of bowel prolapse. Not to mention graphic photographs of something resembling afterbirth protruding from people’s bottoms. Apparently prolapsed bowels are not uncommon with weight lifters? ‘Bob from Barnsley’ volunteered the info that the last time it happened to him (after an intense barbell lifting session) he simply poked his innards back up with his finger. ‘No fuckin problem’.

Quite.

Turns out my ‘prolapse’ was hard poo.

I’ll spare you the details of how I found that out.

Er, why are you talking about shit, you manky bastard?

Because IBS affects a lot of anxious people and until they know it’s IBS, they think it’s something terminal.

I thought it was bowel cancer.

It’s easy to understand how IBS can scare the living daylights out of people and a how health anxiety can develop, but if you ever find yourself poking around in your poo – it’s probably time to get some therapy!

There’s NO shame in being a hypochondriac.

Some of the world’s best have been hypochondriacs!

It’s hard to imagine Florence Nightingale (the most famous nurse in the universe) was in fact a hypochondriac, but she spent the last 57 years of her life bedridden convinced she was dying. Flo eventually flitted off her mortal coil at the grand old age of 90. Who says that doing sod all is no good for you?!

My health anxiety co-exists with a panic disorder, as it often does. The thing with panic disorder is that you get panic attacks, which are terrifying enough when they happen in the daytime, but the majority of mine happen at night. These are known as Nocturnal Panic Attacks and leading up to my crisis point I was having at least one attack every night, cue Insomnia! A tired mind is an irrational mind and all those normal symptoms of stress became life threatening to me.

There was a period where I was either pestering my doctors, the out of hours doctors or A & E. My health was my existence – my obsession.

I was having a mental breakdown.

Writing this post (specifically the literally shit bits) I can see the funny side, but at the time it was anything but funny.

IT WAS TERRIFYING.

I guess I was destined to breakdown at some point in my life because I am one of the many autistic people who’ve had to stumble through life undiagnosed. Once diagnosed we are labelled as ‘highly functioning’ though I can assure you that it’s a misleading term as most of us struggle to exist, let alone live.

I am also hyper-aware of changes in my body. Most people are unaware of such changes, but I’m special, innit?

Being naturally anxious (and obsessive) this makes me a prime candidate for health anxiety. Also, I’ve been exposed to death earlier than most as my family started dying off before I could say “Mummy, I’m going to be sick”. By the time I was 26 I’d lost all my grandparents, a school friend, my father-in-law, an aunt, an uncle and my father – The Reaper was on overtime with my lot!

When it’s written in black and white, it’s easy to see how I came to lose the plot. However, I knew I needed help, so I got some therapy. Got cured (ish) and I no longer stare at my poo longer than is necessary, or healthy.

Will I ever be free of health anxiety? Probably not, because worrying is stamped into my DNA. If they ever autopsy my body, they will find WORRIER written through me like a stick of Blackpool Rock!

There is a massive difference between controlling health anxiety and and it controlling you..

In between Andy Warhol and shit-prodders like me is awareness. It’s acting on persistent or unusual symptoms instead of ignoring them.

My advice is to learn about the effects of stress on the body. Start with this blog if you want. I’ve written about it enough times. Just search for health anxiety. Or read some books. Whatever. Just educate yourself because knowledge will help to remove the fear.

I write about my experiences to help people. No filters. I share my crap (literally in this post) so that people will see that there is no shame, whatsoever, in being mentally ill.

The End.

 

 

 

 

 

Anxiety: All Aboard The Crazy Train

 

It’s normal to have aches and pains in middle-age. The problem with minor aches and pains when you have a fearful and sleep deprived mind is that you start to overthink them until they turn into something terminal, like cancer.

This is health anxiety.

Since my late 30s there has always been a part of my body playing me up. This week it’s neck pain and I’m having another IBS flare up. I’m constipated and there is a niggling pain in my lower bowel region. A few months back I would have Googled my symptoms, come up with bowel cancer and scared the metaphorical crap out of myself.

This is what I now call ‘climbing aboard the crazy train’.

The crazy train is the runaway thoughts train. It’s a scary ride. Scarier than ANYTHING you have ever ridden on in any theme park.

Or ever will.

It’s fulled by your catastrophic thoughts. There is no driver. There are no passengers. There is only YOU.

These are just some of my anxiety symptoms over the past six years.

  • Allergies
  • Back pain, stiffness
  • Breathing problems
  • Blanching (pale face)
  • Body Aches
  • Body Jolts
  • Body Zaps
  • Body shakes
  • Body Tremors
  • Blurred vision/sensitivity to light
  • Body Temperature (going from very hot to very cold)
  • Bloating
  • Brain zaps
  • Brain fog
  • Burning sensation on skin
  • Buzzing in hands, arms and feet.
  • Chest pain
  • Chest tightness
  • Chills
  • Constipation
  • Craving sugar
  • Crazy thoughts
  • Difficulty speaking (slow speech)
  • Diarrhoea
  • Depersonalisation
  • Difficulty thinking/concentrating
  • Dizziness
  • Difficulty swallowing
  • Dry mouth
  • Flu-like symptoms
  • Fear of dying, of losing control and going crazy
  • Feelings of unreality
  • Feeling that the tongue is swollen
  • Frequent urination
  • Hair loss
  • Headaches/migraine
  • Heart palpitations
  • Hot flashes
  • Hyperactivity
  • Insomnia
  • Loss of appetite
  • Mouth (burning tongue and clicking jaw)
  • Memory loss
  • Muscles (vibrating, tremors, weakness and wastage)
  • Nausea (retching and vomiting)
  • Neck (shoulder and neck tension and stiffness)
  • Nervous stomach
  • Night sweats
  • Numbness in fingers, feet and arms
  • Rapid/irregular heartbeat
  • Pulsing sensation
  • Sensitivity to foods and medication
  • Shortness of breath
  • Sexual Dysfunction
  • Shooting and stabbing pains
  • Skipped heart beats
  • Soreness on scalp (like bruising)
  • Twitching
  • Tinny taste in mouth
  • Tinnitus
  • Lightheaded
  • Weak limbs
  • Weight loss

To list ALL my symptoms would obliterate my word count but you will see that my anxiety symptoms have affected me literally from my head to my feet and I have multiple symptoms at any one time. In my case, being menopausal and autistic means that there are overlaps but the anxiety makes things profoundly worse. For instance, my Tinnitus isn’t an anxiety symptom per se but it is worsened by the anxiety.

The most comprehensive list of anxiety symptoms I know of is here.

The next time you say, ‘THERE’S ABSOLUTELY NO WAY THIS SYMPTOM CAN BE DUE TO ANXIETY!’

Have another read through the list!

All these symptoms and the ones listed in the above link are symptoms of stress.

Heart symptoms are classic anxiety symptoms but you should ALWAYS get them checked out if they are new for you. I underwent tests on my heart and the doctors concluded that my ticker was doing everything that it should, it was just beating faster than it should because my body constantly thinks it’s in danger.

I have generalized anxiety with health anxiety that is now in ‘remission’ cos I got myself some therapy, innit? I’m also autistic which is where the roots of my life-long anxiety problems lie. A lot of autistic people have mental health issues. Most, I’d say. This is because it’s stressful living in a world that you don’t understand and which doesn’t understand you. I also have OCD with sporadic bouts of depression. Not forgetting the good old menopause which means I am lacking in the hormones which kept me sane (ish) for 30 years – discounting one week out of every month where I went psycho and would have willingly stabbed somebody for their Mars Bar..

Over these past six years, I have been UTTERLY convinced that I have having a heart attack or that one is imminent. Or that I am riddled with cancer or some other insidious disease. Yet, ALL the tests keep coming back clear. The horrors that I have tortured myself exist only in my imagination. Whoever said that autistic people don’t have imagination? I have a fabulous imagination. Ask my GP!

Everybody is different when it comes to anxiety. My symptoms may not be your symptoms but the one thing I have learned about anxiety is that it affects your WHOLE body. Symptoms are transient. They stick around for a few days or a few months but then they go to be replaced by something else. To the exhausted mind – new symptoms equals fear.

‘THIS time, I’m really ill.’

Yes you are, but the illness is mental not physical. Dear.

A few months ago I would have been hyperventilating in my GP’s surgery at the onset of a new symptom but I have been there, done that and the t shirt is a mangled mess. Now, I calmly remind myself to acknowledge the symptom but not to Google it. If it lasts longer than two weeks, I see my GP.

It is important that I don’t CATASTROPHISE.

Yesterday it was neck-pain to the point where I needed painkillers but instead of allowing my mind to start shitting me. CANCER? OMG AM GONNA DIE kind of thing, I thought it through logically..

Last week, I’d been decorating, as in, climbing up ladders and looking up. I was working muscles that I hadn’t used in a while. Plus, I have arthritis. When you look at it rationally it’s easy to see why my neck would be giving me gyp. Simple isn’t it? IBS symptoms? I’ve been back on the beans and onions. To the exhausted mind – ANY pain – fires up the stress response. It has to be an illness, right?

Nope.

Don’t believe everything you think.

I didn’t allow my thoughts to run away with me. I took painkillers and each time the ‘what if?’ Gremlin wandered into my mind, I acknowledged it for what it was – A THOUGHT – and carried on binge watching Benidorm. Today, there is no pain and I had a decent night’s sleep because I didn’t climb aboard the crazy train.

Way to go, me.

The point of this post is to help you to understand that anxiety affects the entire body. Often there will be no explanation other than stress hormones affecting your body. I wouldn’t have thought that my scalp feeling bruised was an anxiety symptom but it is. Or a clicking jaw. The good news is that your symptoms will start to fade away as your stress levels recede. If you need the reassurance of your GP, by all means go and get your ten minutes worth.

Then ACCEPT it when they tell you it’s anxiety, especially when tests come back clear.

The crazy train will come for you.

YOU DON’T HAVE TO CLIMB ABOARD.

 

Autism: Confessions of a Skin-Picker

 

What’s Stimming?

Stimming is self-stimulatory behaviour. It is repetition of movement, sound or movement with objects.

It’s done for relief and pleasure.

Simplified: Stimming calms or stimulates.

Everybody stims, however, NTs have more socially acceptable stims and are more able to control them.

With an autistic person – stims are necessary to their mental health well being.

We stim to release tension or to stimulate ourselves.

Some people stimulate themselves to feel pain for pleasure, like my friend who liked to pull her leg hairs out one by one using tweezers.

*eyes are watering*

I didn’t know I was autistic until five years ago – so I’ve had forty plus years of generally hiding/suppressing behaviour that I now understand to be stimming..

It started with spinning where, as a small child, I would spin myself around until the butterflies danced in my stomach.  Then came infants school where there were boxes upon boxes of colourful (and tactile) objects that I liked to stroke or manipulate in my hand. Doing this soothed my anxious mind – albeit temporarily. I wasn’t interested in constructing things like the other children. Sod THAT for a game of conkers! I just wanted to sit in a corner and stroke stuff!

Speaking of conkers…

I like to touch them. (NOT a euphemism)

Then came the glue..

You’re probably reading this and thinking, ‘Glue? Oh my God, she’s a glue sniffer!’

Rest assured. I wasn’t (and have never been) a glue sniffer.

I may, however, have had a brief dalliance with Tippex in my high school days..

One of my all time loves is art and that love started in school. However, art was sensory for me. Visually? Great. Smells? Not so great.

I loved the smell of paint. Still do, but not when it’s combined with the aroma of curdled milk, cabbage and dried vomit as was the case in school. That said, I loved to create pieces of art so I forced myself myself to tolerate everything else..

The other sensory issue was that I almost pathologically HATED getting stuff on my fingers..

My mother told me that I was using a knife and fork a lot younger than my brothers were. She presumed it’s because boys are generally slower than girls? I think it’s probably because I disliked the feel of slimy food on my fingers. *shudders* This also explains why I find making pastry so unpleasant, hence, I avoid it wherever possible.

Whoever invented ‘Jus Rol’ has my unwavering adulation.

So, glue..

The first time I used glue – the stickiness made me anxious but I had communication issues so I wasn’t able to ask if I could go and wash my hands. I was starting with palpitations when THIS happened:

The glue dried and I discovered that peeling it off my fingers was quite possibly the best thing to happen to me since Enid Blyton!

I could happily lose myself in a glue-peeling session which made my school day slightly more tolerable.

Note: FFS don’t try this using Super Glue!

Glue-picking was the precursor to my most used stim – skin picking.

Yeah, a lot of my stims are gross.

When I was 21 I got chicken pox. Initially, this was crap because I was pregnant at the time. I was the size of Brazil with spots that itched like fuckery. I remember the one thing that people kept saying to me: ‘WHATEVER YOU DO, DON’T PICK THE SCABS!’

That’s like telling Mary Berry to stop baking and become a binman..

OF COURSE I PICKED THEM!!

I especially loved the scabs on my head because I would pull them ever-so-slowly through my hair which was, like, orgasmically pleasurable.

I’ve always picked my spots. And other people’s. Feeling that satisfying ‘pop’ as zit matter is released at high velocity? That’s right up there on the pleasure scale for me. Welcome to the pleasure dome mateys! I literally don’t understand how a person can have a big fat juicy zit and NOT want to pop it? Weirdos.

Downside is: I have scars.

LOTS of scars.

I also pick the skin off my lips. Sometimes with my fingers – sometimes with my teeth. NOT the best of stims if you like vinegar on your chips!

Zit slaying and lip picking are stims I try and save for ‘me time’ because even I know that it’s socially unacceptable to be pecking at yourself in public like a demented pigeon. Even so – sometimes I forget myself..

My bad, motherfunglers.

Rest assured that once I’ve acknowledged my skanky behaviour, I switch to a more socially acceptable stim – like fiddling with my cube/keys/phone/pebble/whatever.

Should I mention that I’m allergic to nickle so when I wear cheap earrings, my skin weeps, then crusts over? I guess you’ll know where I’m going with this so I’ll move on..

My, not gross stims, include rocking back and forth or side to side. I take more in when I’m rocking because I am less focused on my anxiety. It’s a gentle movement but if I’m having an anxiety crisis at home, it’s full on IN YOUR FACE back and forth rocking sometimes combined with manic pacing up and down.

Then there’s my fidget cube. I say mine. I may have nicked it from The Boy because his stim of choice is to chew his nails..

I also use a spinner which I like to spin near my cheek because I like how it feels on my face. No doubt, I’ll probably end up in A & E one day with a spinner-related facial injury..

NOTE: I’m trying very hard NOT to think of the scab..

Next, is my thumb ring.

Yep, I just lurve touching my ring.

Leaaaaaaave it.

I always wear one on my thumb which I manipulate with my index finger or my left index finger and thumb. It started off as me trying to give myself an edgy look? Then I realised that manipulating it calmed me down, so I’ve worn one for years. My current one is metallic rainbow colours so I get visual and tactile pleasure. Win and win!

I also LOVE soft materials. I wear soft leggings and stroke my legs, but not in a kinky way. I love blankets too – especially fleecy ones. They comfort me and keep my extremities semi-warm as I seem to be lacking blood flow in my hands and feet. Plus, under a blanket, you can hide from the world.

Also, people trying to sell you PVC windows. Or God.

Going back to pastry, I was once informed that cold hands make better pastry? So it’s a shame that I dislike the feel of it on my fingers or I could be the pastry queen of the North by now, no?

I get that I have some gross stims. I mean, picking my skin is pretty, er, what’s that word the young un’s use? Ah yes, ‘minging’ but it gets me through the day and through life. It’s not like I sit in Costa flicking my skin into people’s skinny lattes is it?

FYI, I am picking my lips right now as I’m editing this post for the 135th time.

Finally, people may tell you that stimming is offensive or unacceptable. The problem is with them, not you. Stimming has a purpose. It is part of the armory that we need to exist in this world. For this reason (and many others) it is perfectly acceptable to tell them politely, but with conviction, to eff off.

Me? I stim to calm myself and because it feels good.

 

 

 

 

 

 

 

 

 

 

 

Autism and Socialising

I avoid socialising like the plague because I am socially challenged, phobic, whatever. However, on occasion, I’ve forced myself to be sociable in order to try and fit in, often with disastrous consequences.

This was one such occasion..

Sometime in the 1990s

I found myself agreeing to meeting up with my work colleagues for a drink.

Needless to say, NIGHTMARE!

I don’t remember how I got to the pub. What I do remember is feeling all those fight or flight symptoms that my body produces when it thinks it’s in danger.

The danger of having to walk into an unfamiliar building.

The danger of having to locate my work colleagues without the aid of a mobile phone.*

The danger of having to act ‘normal’.

I walked into the pub. I was possibly only standing there for a few minutes, but it might as well have been hours. I didn’t know what to do. I couldn’t see any familiar faces. I was aware I was being stared at. Plus, my shoes were pinching the shit out of me. I was just about to adopt the flight aspect of the stress response when I saw one of my colleagues waving at me.

Flight was no longer an option.

There were seven girls including me. I say girls – we were all in our 20s but I was the oldest. I was also the only one who was married and who had children so I was already on a different ‘page’, as it were.

I refused a drink. This was met with some funny looks. I mean, who refuses a drink in a pub, right?

I sat fiddling with stuff in my handbag and concentrated very hard on not throwing up.

No doubt somebody offered me a crisp. It was a pub. People offer crisps. It’s what people do.

I’d have said: ‘No thanks’.

I’d have thought: ‘I’m actually struggling to swallow at the moment, so I might choke on the fucking thing and one of you might have to do that humping me from behind move to get me to cough it up. That or phone for an ambulance.’

Not that I overthink things at all..

I just sat there trying to nod and smile in the appropriate places, as you do.

After about five minutes (which felt like five hours) a man appeared in front of me, smiling, and said, “Hi, (my name) you remember me don’t you?”

All I could manage was a vacant stare.

I’ve had random people approach me in the street and say stuff like, ‘SMILE LOVE! IT’LL NEVER HAPPEN!’ so I wondered if this was one of those times?

Or maybe he was pissed?

The difference was that THIS man knew my name and was coming out with details about me.

My brain was working overtime trying to place this person. Why couldn’t I remember? What was wrong with me? Was I having a stroke?

What happens when I’m stressed is that my words don’t come out right. I mix them up or say something I don’t mean to say. Or the words don’t come out at all. I need time to process before I speak in social situations. There was no time here. I was in a situation and my brain couldn’t handle it.

My body went into panic mode.

I could feel the stress response flooding my entire being. My face was burning and I could feel cold sweat running down my upper arms. You know those embarrassing sweaty patches that appear on the underarms of your shirt? That. With bells on.

My heart was thumping out of my chest.

My mouth was dryer than a camels hoof.

I wanted to vomit.

I needed a really BIG wee.

My eye tic kicked in.

My body was reacting as if a drooling tiger was standing in front of me. I was powerless to stop what was happening to my body. Nor could I run from it. I had no option but to endure it..

In the background, I that noticed the other girls were nudging each other doing that giggling thing that a lot of girls do. They looked at me, then they’d look away and giggle some more.

*confused face*

I wanted to run as fast as my size fours would carry me but I couldn’t move.

During fight or flight some people run, others fight. Some just freeze.

I froze.

I’m a freezer.

Freezing is generally a primeval attempt to stop a predator from seeing you. The problem was that the predator had not only seen me, but was tucking into my innards – theoretically speaking. I think this means that should I find myself in the direct line of an articulated lorry – I may quite likely be run over.

I don’t remember anything after that, as is the case with anything traumatic.

Some of you might read this and think ‘Traumatic? Oh get a grip you silly cow!’

I get that it sounds ridiculous but you’ll either understand this or you won’t but the definition of traumatic is deeply disturbing or distressing.

To me, it was traumatic and my body reacted accordingly.

Some days later, one of the girls confessed that they’d asked the man to act as if he knew me – for a laugh.

I was the joke.

Am I missing something here?

Were those girls being funny?

Or were they being mean?

To this day, I don’t know.

I never went out with them again.

Why would I want to?

I didn’t understand their language. They literally giggled at EVERYTHING, which I found irritating. I don’t giggle. If something is funny, I laugh. Sometimes until a bit of wee comes out. Granted, some of this is down to a compromised pelvic floor but mostly it’s because I laugh from my belly. Giggling to me is like water crackers, as in, what’s the point?

So, I was being publically humiliated and apparently it was hilarious.

I get that I am different. I’ve always known it but I’ve tried my hardest to fit in. The trouble is that the harder we try to fit in, the more we make ourselves stand out.

Back then I didn’t have a clue why I couldn’t fit in.

Now I know it’s because I’m autistic.

I’m the misfit.

The odd one out.

Or I was..

Then I found my ‘tribe’.

People who get me.

People who understand everything I say and do.

People who don’t look at me as if I am a moron.

People who will read this post and think, ‘Yeah, me too!!!’

People like me.

I go back through my life and wonder, could have done things differently? The answer is no. My brain will always react the same way because it’s wired up differently to the neurotypical brain. I am what I am and all that shit and as Gloria Gaynor says, ‘What I am needs no excuses’.

Me, the reboot, doesn’t push myself to socialise like this anymore. These days, I reserve my energy for people who deserve it. I no longer say yes to things I don’t want to do in order to fit in. I no longer make excuses, nor do I have to provide an explanation why I don’t want to do something. I politely decline the offers (not that there are many) and mentally high-five myself for putting myself first.

I bang my own drum
Some think it’s noise, I think it’s pretty

I Am What I Am ~ Gloria Gaynor

 

 

 

 

 

 

 

Anxiety: Rewiring The Brain

 

My autistic brain likes to research. I have an almost pathological need to understand things. I can’t take things at face value. I have to dig deeper. So, I have an anxiety disorder and in true ‘me’ fashion. I have to know why I am an anxiety case.

I’ve spent 47 years living with anxiety and the last seven years researching it. Maybe that makes me something of an expert? I don’t know what it’s like not to have anxiety on some level. I think I came out of my mother’s womb hyperventilating but having anxiety and understanding it are different things.

I understand anxiety.

I understand panic disorder.

Knowledge is power.

So, the educational stuff..

The Cortex (or Tex because I like to give things names)

Tex

Tex is the thinking part of our brain. He’s what makes us human, able to reason and know when some bastard has short-changed us. It’s also where we develop negative thoughts and irrational thinking. This is cortex based anxiety.

Tex is a good bloke but sometimes he gets overwhelmed by the volume of negative self-talk we throw at him with all the ‘I’m a shit person’. ‘I will never be happy’. ‘What’s the point?’ ‘This is just too hard’. Not to mention the ‘What if’s?’ In time, these negative thoughts repeatedly trigger the fight or flight response which releases stress hormones into the body. We have physical symptoms. Then we worry that we have a life threatening disease. When this happens, we have become mentally ill.

Simplified: Tex thinks.

The Amygdala or Amy for short. (see above)

Amy

Amy is small, almond shaped and responsible for the response and memory of emotions, especially fear. She is also the reason we don’t become extinct because: No amygdala = no fear = extinction.

Whenever your flight or flight is triggered, that’s Amy doing her stuff.

Amy is responsible for phobias. The reason I break out into a cold sweat when I clap eyes on a spider is because I found one crawling around in my nightdress when I was five.

I SCREAMED THE HOUSE DOWN.

Amy remembers this event so every time I see one of the eight-legged fuckers, my heart bangs like an old barn door in a gale.

I have bad dreams every night and wake up in a state of anxiety because my fight or flight response has been triggered by my subconscious. This is amygdala based anxiety.

Simplified: Amy reacts.

Some people have cortex based anxiety. Some have amygdala based anxiety. Some unfortunates have both.

I have both.

One thing can be said of me.. I do NOT do things by halves.

My physical symptoms have given me cause to imagine the very worst is happening to me, as in terminal illness instead of anxiety. This is cortex based anxiety. Basically, a Dementor has poor old Tex in a choke hold and is draining all the happy from him. How’s that for an analogy?

Every night my Quentin Tarantino-esque dreams prompt Amy to leap into action, cape and all. She’s literally a super hero trying to save my life. Only, she doesn’t understand that the ‘danger’ to my life is a harmless dream – not an axe murderer making his way up the stairs.

None of this is Amy’s fault. She is trying to keep me safe. She must be knackered though. I know I am. Therefore, changing how I think is necessary if I want to control my anxiety instead of it controlling me. Note I say ‘control’ as opposed to ‘cure’. I have to be realistic here. I’m autistic and the autistic brain is prone to anxiety. I’ve always been anxious and, failing a lobotomy, I always will be. The best I can hope for is to be able to control my anxiety instead of it controlling me.

Changing how we think is important but there are other things we can do to help to rewire our brains. The first thing is to understand the effects fear has on the body and how relaxation can reverse it.

The Sympathetic Nervous System (SNS)

The sympathetic nervous system is part of the fight or flight response.

Adrenalin and cortisol are released.

Our hearts beat faster.

Blood pressure goes up.

The digestive system slows right down.

We tremble, sweat or get the chills.

We have the urge to open our bowels or have a wee because a full bladder isn’t helpful when we need to run like buggery or punch a mugger in the face, right?

When SNS kicks in, the amygdala has been activated. Remember, Amy doesn’t know if you are in danger of being run over or if it’s merely your thoughts that are asking her to step up and save your life.

The Parasympathetic Nervous System (PNS)

Heart rate slows

Blood pressure lowers.

Gastric juices increase enabling digestion.

Breathing slows down.

Body temperature returns to normal.

PNS is the body returning to normal.

We need BOTH responses to live. It’s just a question of balance.

Research shows that doing deep breathing exercises, mediation and relaxation exercises helps to activate PNS. If you do relaxation exercises regularly you will eventually be able to stop your amygdala from responding to your thoughts as if they are a threat on your life.

If your anxiety is cortex based, you need to work on your thoughts.

Things you can do include:

  • Writing your thoughts down and, if you want to, trashing them.
  • Try and look at your situation in a different way.
  • Do what makes you happy.
  • Avoid people off who make you feel like shit. If you are in the quicksand, you want someone who will lift you out, not push you down even further.

If your anxiety is amygdala based, relaxation therapies are the way to go.

Relaxation therapies include:

  • Yoga
  • Guided meditation
  • Progressive muscle relaxation
  • Deep breathing exercises
  • Mindfulness

Any of these therapies will help to rewire your brain but you have to be prepared to put the effort in. It won’t happen by itself. The beauty of breathing exercises is that they can be done anywhere and nobody will know you are doing them except for you. Also, progressive muscle relaxation will teach you exactly where you hold tension in your body. For me, it’s my jaw, shoulders, stomach and, believe it or not, my arse.

Moving on..

Breathing

We need to breathe or we die. Simple.

Anxious people don’t breathe properly. They breathe so shallowly that they hyperventilate which causes a whole load of unpleasant symptoms.

Learning to breathe properly is probably the most valuable thing we will ever learn.

Try it when you feel stressed.

Take a big breath in.

Feel your diaphragm expanding.

Then let it out s l o w l y.

Do this another three or four times.

If you’ve done it correctly your heart rate will have slowed down a little and you will feel calmer.

If you do nothing else, learn to breathe properly.

When it comes to therapies find what works for you but be consistent.

I find it helpful to acknowledge when my thoughts are turning funky and to do my breathing exercises.

It slows my heart rate down.

It calms me.

It stops Amy from launching into action.

I tell her, ‘I don’t need you, Amy. It’s just my crazy thoughts. Go wash your cape or something.’

So, when you think you will be this way forever and it’s hopeless, remind yourself that it is possible to rewire the brain by changing your thoughts and doing exercises which activate the parasympathetic nervous system.

Whenever you think that it’s impossible and you can’t be arsed because it will never work etc etc – just change the m to an s and put a lil space in to make it is possible.

There is a way. You just have to find what works for you.

Cheesey vector art to close the post.

 

 

 

 

 

 

Autism and Burnout

Burnout is a chronic state of stress which leads to physical and emotional exhaustion. It might manifest as anxiety or depression or both.

The Signs Of Physical and Emotional Exhaustion

  • Fatigue: You lack energy and feel more tired than usual.
  • Insomnia: Starts with the occasional bad night and progresses to the inability to sleep or stay asleep every night.
  • Concentration: Lack of sleep affects concentration and the ability to complete tasks.
  • Physical Symptoms: Palpitations, chest pain, chills, stomach aches, headaches and hundreds of other physical symptoms that make you worry that you are gravely ill which in turn forces you even further down the wormhole.
  • Illness: Your body becomes more susceptible to immune related illness.
  • Appetite: You may lose your appetite or go the other way and over-eat, especially sugary or high-carb foods.

Alongside the physical signs, there are emotional signs.

  • Loss of enjoyment about things you love.
  • Negativity: You become pessimistic about everything. In my case, it isn’t glass half empty. It’s glass smashed into smithereens all over the floor!
  • Isolation: Socialising is hard work for most autistic people but during burnout, we don’t have the energy or inclination to socialise at all. This includes social media.
  • Detachment: As an autist, I have always felt detached from everybody else but detachment from burnout can be a detachment from everything including yourself.

When you reach this stage it is illness.

A lot of autistic people will reach burnout stage at some point in their lives. The reason is that trying to exist in an NT world is stressful and exhausting and the human body can only take so much battering from stress hormones before it starts to burnout.

Burnout.

Nervous Breakdown.

Shutdown.

Call it what you will but it ALL amounts to the same thing.

Your body has had enough and is no longer whispering words of warning to you. IT IS SCREAMING AT YOU TO FUCKING DO SOMETHING!

The whispers started for me as a small child when I constantly felt sick or threw up and was living in a constant state of fear.

The whispers got louder as a teenager when I developed an eating disorder as a way of trying to gain control of my own life.

As a twenty-something the whispers told me that it wasn’t normal to be seeing ‘black things’ scurrying across the floor that nobody else could see or imaginary spiders in front of my eyes.

At thirty-something I tried to shut the whispers up with alcohol.

At forty-something my mother died and I had my first nocturnal panic attack.

At 46 years of age I had a nervous breakdown.

Finally, my body said ‘ENOUGH’.

Physically and mentally, I burned out.

My body has pumped so much adrenalin into my system that my fight or flight response now triggers when it shouldn’t – like in response to my dreams or the heating coming on. This is why I have insomnia. This is why I wake up in the early hours every morning.

Why do autistic people burn out?

The more ‘highly functioning’ we are, the more is expected of us and the more we push ourselves to be neurotypical. People can’t see what’s going on inside of us. They just see somebody who ‘looks’ perfectly normal. The effort it takes to be able to pull this off is phenomenal and sooner or later, the consequences will be burnout.

A lot of autistic people suffer from anxiety and anxiety means fear.

We fear walking out of the front door into a noisy and confusing world. We fear having to socialise. We fear having to make small conversation at work. We fear that we will lose control. We fear people being able to see past our pretence of being neurotypical. We fear rejection. We fear there being no escape route.

We fear.

Our hearts beat faster. Our bodies are constantly primed to fight or run. The fight or flight response is triggered numerous times a day and over time it takes longer for our bodies to recover from it. Eventually, even the fittest of us will succumb to illness. Either physical, mental or both.

Once you have had a breakdown you are never the same. It’s an invisible scar. A wormhole opened up and you know that it won’t take a lot for you to lose yourself down there again. As if life wasn’t already tough enough? Now there is this fragility about you. The difference is that by now you know you have to take better care of yourself and your needs.

You learn to say no.

You learn to let go of people/situations that drain you.

You accept your limitations.

You will hang up the neurotypical ‘skin suit’ for good.

What the fark is a skin suit?

If you’ve ever seen Men in Black, you’ll be familiar with the big ol’ ‘bug’ who comes to Earth. The alien nicks farmer Edgar’s skin so he can look less, er, conspicuous. Only it’s not his skin, so it doesn’t fit. He looks weird and it makes him uber cranky because it feels pretty shit to be wearing someone else’s skin. A bit like trying to cram yourself into size ten jeans when you are a generous twelve..

Feeling ‘alien’ is a feeling that a lot of autistic people identify with. We feel like we don’t belong here and a lot of us pretend to be neurotypical in order to not stand out. It’s an act and acting requires effort. When we shut the outside world out, it’s such a relief to finally be us.

My breakdown coincided with my diagnosis and even though I am still fighting to rid myself of panic disorder and insomnia, I am finally free of the constricting neurotypical suit I’ve been inhabiting for the majority of my life.

I feel lighter.

I don’t push myself to be ‘normal’ anymore.

If I can’t go to social functions I don’t beat myself up about it.

If I can’t face shopping in the supermarket, I’ll do it online.

I haven’t given up on life. I just find ways that make living a little easier.

When I get overwhelmed I shut myself away like I have always done. The difference is that I no longer feel guilty about it. People can think what the hell they like because you know what? They will anyway because that’s what people do.

This is no longer about them.

It’s about you.

It’s about self-care.

With social media, I get overwhelmed pretty quickly so I have learned to give myself breaks from it and to limit time spent on the internet. The internet can get pretty intense and I soak up the negative stuff like a sponge. Bad news and hate is all over the internet. It affects me, then I get ill. Yes, we live in a computer age and the internet can be useful but it can also be damaging to your mental health so it’s up to us to police our internet time so it works for us not against us.

I have also accepted that I can’t do ‘life’ on my own so now I ask for help when I need it. Being autistic, there are certain things that I struggle with. Asking for help, isn’t being weak. It’s self-care.

The thing is that I’ve have put so much effort into existing that I’m exhausted and for what?

To fit in?

So I don’t offend people by saying no?

I’m done with all that.

We should all be done with that, right?

If you can identify with this post. Please don’t let another day go by where you live your life on somebody else’s terms. If it hasn’t already, it will make you ill.

It’s time to be the fabulous human being you were born to be.

It’s time to be you.

“If you celebrate your differentness, the world will, too. It believes exactly what you tell it—through the words you use to describe yourself, the actions you take to care for yourself, and the choices you make to express yourself. Tell the world you are one-of-a-kind creation who came here to experience wonder and spread joy. Expect to be accommodated.” ~ Victoria Moran – Lit From Within

 

 

 

 

 

 

 

Spontaneity Hurts.

Say yes, and you’ll figure it afterwards ~ Tina Fey

Doesn’t work that way for some people, Tina.

It certainly doesn’t work that way for me.

Sometimes it will appear that I am being spontaneous, but the truth is that I will have been thinking about something in my head long before I actually say, ‘Shall we do this today?’ However, this can only apply to me and OH as The Boy needs time to adjust to any changes because he is autistic too.

One problem I’ve always had is having to cope with other people’s spontaneity – such as those who turn up without notice. I’ve had decades of people just turning up unannounced. There have been countless times when I’ve hidden upstairs or in the kitchen to avoid answering the door..

As part of my diagnosis my ex husband wrote a letter about me as, at that point, he’d lived with me the longest. He referenced how I used to do these things and how at the time he thought I was being moody or rude. He noted that every time the door went or the phone rang, I was suddenly elsewhere..

My parents never turned up unannounced. I guess this was because my mother also struggled with unannounced visitors. My mother-in-law, bless her, was different. She was full on neurotypical and as old fashioned as they came. I know without a doubt that she loved me, but I also know that she didn’t understand me. She’d often ask her son why I was so moody, only I wasn’t being ‘moody’. I was struggling to process the change to routine.

In the early years of my first marriage, I was practically a hermit. I struggled with everything that most people do without thinking. Even fetching the milk in was stressful because there was a chance that one of the neighbours would see me and I’d have to speak to or ignore them. It was often the latter. Sometimes because it was easier. Sometimes because the words wouldn’t come out. Hence, I got myself a reputation for being ‘weird’ or ‘stuck up’. I’ve waited hours for neighbours to go in just so I could walk up the street. On especially anxious days, I have cancelled appointments rather than walk past people in my street. Sounds ridiculous, I know, but it’s true.

My mother-in-law had set days where she would come to ours. The routine worked for me. However, sometimes she’d just turn up when I was on my own. She’d peer in through the living room window and rap on the glass. I loved this woman so much but my heart would sink, not because I didn’t want her, but because I wasn’t prepared for her. There was no time to get my head around it and I had no choice but to let her in because no matter how muddled my head was, I would never have left an elderly lady on the doorstep.

A lot of people like to be spontaneous but I’d hazard a guess that the majority who do are neurotypical.

Take Christmas, for example..

Every year, I give OH a list of what I want for Christmas (almost always books) and he always says, ‘We’ll see’. On hearing those words, I become anxious. He has this thing where he likes to ‘keep me guessing’. It’s utterly NT and it drives me FUCKING NUTS!

Every year, I tell him, ‘I don’t like surprises. Please just get me what I’ve asked for’.

Every year he says, ‘We’ll see’.

I’d hoped that my DX would change this and he would understand that surprises stress me, even nice ones.

Last week, I told him that I’d give him my list of books and he replied that I’d be getting something else as well because it made him happy to surprise me.

What’s more important? The pleasure of the giver? Or the distress of the receiver?

I can’t help how I am. I can’t adapt. No matter what I do, I will ALWAYS react negatively to spontaneity.

I get that there has to be compromise in any relationship, let alone a neurotypical/autistic one, but sometimes compromise isn’t possible. In this situation there can be no positive compromise. It can only be that OH does as I ask him or I try and cope with the anxiety in order to make him happy.

An example of spontaneity malfunction from my childhood..

We’d just moved and my life had been turned upside down. That summer, I turned 11 and my mother decided that I was old enough to be sent on errands, whereas before, I’d always gone with my brother. One day she told me to go to the local shop for her. It was a bad day anxiety wise and I had no confidence at all. I reacted badly. However, my mother interpreted my behaviour as being normal for a girl my age. Except that I wasn’t being rude. Or lazy. I was overwhelmed.

How can a trip round to the local shop overwhelm you?

Here’s how.

The request was spontaneous. There was no time for me to process or plan. Mum wanted something from the shop and she wanted it there and then.

The only route to the shop was along a busy main road where the traffic, at the best of times, was loud and unrelenting. Part of pavement narrowed with railings on the roadside and overgrown bushes on the other. It was claustrophobic and forced you into having communicate when people allowed you past or when they thanked you for allowing them past because for all my problems, I have always practiced good manners whenever possible.

The shop itself was half post-office, half grocery shop and it was always busy after around 10am. Mum sent me round at dinnertime – one of it’s busiest times.

What happens to my brain when I’m stressed is that it goes blank. I struggle to process and retain information. I remember standing in the shop with sweat literally pouring out of me – staring at what my mother had written on the piece of paper..

I was looking but I couldn’t see anything..

The noise was deafening. That, combined with the smells of cooked meats and that general grocery shop smell was an assault on my senses. The ‘normal’ thing to have done would have been to ask someone, but that meant communicating and it was beyond my capability at that moment in time. In the end, I walked out of the shop with nothing and went back home feeling useless. It was a feeling I would become familiar with as the years went on. It really bothered me that I couldn’t do the spontaneous thing without my brain malfunctioning. I need to plan. I need to know where everything is, right down to the toilets. I need trial runs to unfamiliar places. I’ve done this with holidays. It’s a part of my autism that I wish I didn’t have but I also know it’s a part of me that will never change.

Spontaneity doesn’t make me feel ‘alive’ like it does with most people. It freaks me out and fucks me up.

Since being formally diagnosed as autistic, a lot of the guilt has left me. How can I beat myself up over something that’s beyond my control? Nor do I feel the need to apologise anymore. I can try and educate people but I can’t make them understand that spontaneity hurts.

  I might say yes IF I can figure it out beforehand ~ Me

 

 

 

 

 

 

 

 

 

 

 

Christmas and the Autistic Child

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Most children like Christmas right? For many on the autistic spectrum, Christmas is a stressful time of year. The inevitable changes to routine are enough to send some children spiralling into one meltdown after another..

Same for autistic parents.

The Boy’s anxiety has been climbing for weeks. As soon as things change at school his behaviour deteriorates. He’s on a VERY short fuse and the simplest of requests, like taking his coat off, has him throwing stuff and stomping off upstairs screaming that he wants to DIE. He’s eight going on thirteen only this is him BEFORE the hormones kick in!

Can you imagine when they do?

damage-42658_640

Trip hazard? Or my son when the testosterone kicks in?

The Boy’s need for me is ever greater as he battles with a brain that struggles to cope with Christmas. He likes Christmas but struggles with it just as he struggles with a lot of other things he likes.

There are no decorations up at our house yet as we’re trying to keep stimulus to a minimum and my anxiety is so bad that the mere thought of them makes my heart race. The control freak within me struggles to allow other people to do it and in the past when I have let the kids, er, ‘help’, I have stood there fighting the urge to rugby tackle them to the floor in order to prise the baubles from their clammy little hands. *whispers* I re-did it once they were in bed. It’s something I don’t like about myself but it’s a pathological need for certain things to be aesthetically pleasing in my eyes.

When it comes to visiting Santa, forget it. It’s a sensory nightmare.

Queuing = Hell.

Noise = Hell.

Migraine inducing fairy lights = Hell

Sitting on Santa’s knee. Do they still do that? = Hell.

I hated it as a child. The Boy managed one minute in a queue once and we had to leave. Do your child and yourselves a favour and go to an autism friendly session where the visits are timed, you can take your own present. Visiting Santa should be a pleasant experience for every child, no?

There are things you can do as a non-deranged parent to make things a little easier for your autistic child.

Decorations

  • You can involve your child in buying decorations or letting them help you to put them up.
  • Introduce the decorations gradually. It’s probably best not to have it looking like Santa’s Grotto if your child gets easily overstimulated.
  • Give some thought to your Christmas lights. If your child is very sensitive, a migraine inducing strobe effect probably isn’t the best idea. Static or gentle fade in and fade out lights will be more appropriate.
  • Use countdowns for putting the decorations up and taking them down.
  • Use social stories and visual calendars.

Visiting Santa

  • Check your local papers/social media for autistic friendly Santa-sessions

Presents

  • Mountains of presents will overwhelm most autistic children so it’s best to limit how many they get or don’t put them all out on Christmas Day.
  • If your child has sensory issues pay attention to the paper you use to wrap the presents with.
  • If unwrapping make them anxious then don’t wrap them at all.
  • Place a familiar toy next to the new presents.
  • Try some gentle classical Christmas music in the background especially if classical soothes them normally.

Family

Don’t feel under pressure from your family. If you know your child can’t cope with a big family get together on Christmas Day, then don’t be afraid to tell them to sod off – albeit politely. Your child’s well-being has to come before Great Aunt Ada parking her arse on your sofa all day scoffing the Quality Street eh? Life is different when you have an autistic child. If people get it, great. If they don’t, educate them until they do get it. Maybe give them a book on understanding autism as a Christmas present?

Familiarity

Christmas Day is just the three of us. There are no visitors. There is no Christmas dinner with party hats and other such paraphernalia. The Boy has his usual food and bedtime is the usual time with the usual ritual of a story and his Classic FM.

The Rules are that there are NO rules when it comes to autism. Each person is different. Some love Christmas, some don’t. All autistic people are affected but not necessarily in a negative way.

Me? I find Christmas stressful BUT it’s also the season of fairy lights and I BLOODY LOVE fairy lights!!

As a child I used to lie on the floor under the Christmas tree and stare at them for hours on end. My Nan, having downed a few brandies, would say, “You’re a funny little girl” I used to wonder why she was calling me funny when I hadn’t said or done anything funny. Now I know she was calling me weird. MY OWN GRANDMOTHER!!

Christmas is difficult for me in ways which most people wouldn’t understand. I’m not a Christmas hater – it’s just that there is too much going on and that sends my anxiety orbital. Social media is crammed with Christmas. TV is bombarding us with adverts/mini-movies for the hard sell and it gives me a headache. If I could cherry pick bits of Christmas it would be lights, carols and the act of giving. You can keep the crowds, commercialism and my pet peeve, ‘Secret Santa’.

I don’t suppose it helps matters that my father decided to shuffle off his mortal coil on a Christmas Day. To lose someone you love on any day of the year is bad enough but to lose them on Christmas Day is epically crap. The image of Dad’s lifeless body while Noddy Holder screeched “IT’S CHRISSSSSSSTMAAAAAAAAAAAAAAAS” is forever seared into my memory and while I fight to bring forward the memories where he was the life and soul of Christmas, this one always wins.

As regards The Boy, we try to keep things as close to normal as is possible. Whatever ‘normal’ is.

Header Image via Creative Commons

 

 

The Many Moods Of The Menopause

Most women are used to being moody for two weeks out of every month, right? Our significant others understand that all a woman wants during her premenstrual and menstrual phase are painkillers, a hot water bottle and a family size bar of chocolate and if we don’t get those things we’ll be up on a manslaughter charge. Diminished responsibility, obvs.

Here’s the thing..

Menopausal women don’t get a break from the mood swings. The length of time it can take for things to settle down vary but it can take up to 15 years for all the symptoms to subside.

FIFTEEN YEARS!

When it comes to our ever changing moods – think of them as a relay race where Happy starts off and passes the baton to Irritation – who passes the baton to Anger – who passes the baton to Psycho – who passes the baton to Melancholy – who passes the baton to Guilt who sprints through to the finish.

THEN IT ALL STARTS AGAIN AND NOR NECESSARILY IN THAT ORDER.

Irritation

Everything and everybody irritates you. Nuff said?

Psycho

This is turbo-charged irritability.

Scenario: Mrs X has struggled with hot flushes ALL day. Her boss is an inconsiderate arse biscuit who’s fed up of her numerous visits to the loo to stick her furnace face under the cold tap. She fights her way home in rush hour traffic, then opens her front door to find her living room is a shit-tip. The carpet is 50% dog hair, 50% Pringles. The dishes are doing the leaning tower of Pisa in the sink. The house smells like somebody died in it and the culprits behind the chaos are staring lifelessly at the X Box in some kind of gaming-induced coma. The only reason Mrs X knows they are alive is because their thumbs are still moving..

Mrs X realises that while she’s been slaving away at work, the lazy oafs she heaved out of her vagina sixteen years ago have been sat on their backsides killing zombies all day and calling each other ‘dude’ or ‘man’.

‘Pass the Pringles, Man’

‘Dude. WTF?! You killed me!’

Mrs X starts to feel the familiar sensation of heat rising from her chest upwards..

This is where she goes from irritated to PSYCHO.

She starts yelling. This may or may not be coherent. Then, she starts chucking stuff. First, her handbag hits the wall. Then she frenziedly starts yanking wires out of sockets, spitting out a few effs here and there. This gets her offspring’s attention because to prematurely end a gaming session is like shutting off a life support machine. If you were to look closely enough, you’d notice that they were turning blue..

Once the X Box is in bits all over the floor, Mrs X slams off upstairs for a weep and by the time she resurfaces, the living room’s had a make-over, the dishes are done and all the knives have been hidden.

Unsurprisingly, ‘Psycho Mum’ gets things done because she’s fucking terrifying!

Anxiety

Fear loves the menopause. Having entered into this stage of life, we become more aware than ever of our mortality. We gauge our longevity against that of our mothers and grandmothers. We fear the future. We fear getting old. We fear forgetting. We fear being alone.

We fear everything.

Melancholy

Once we know our reproductive days are over, some women break out the Champagne. Others just get sad. They grieve for the babies they will never have despite knowing that they wouldn’t have had anymore anyway because they’ve, like, been there, done that and worn the tee shirt OVER THEIR HEADS!

Also, their wombs are like withered balloons.

In all honesty, if they were to heave another human out of their fadginas, they would probably need a safety net as part of the birthing plan.

So, we cry for our youthfulness because it’s apparently buggered off, dragging our ovaries with it. A few gins and Spandau Ballet’s Greatest Hits on the iPod and we’re sobbing for Britain. Why? Because when Tony Hadley first crooned the lyrics to True back in 1983 – when we were in full possession of our hormones, faculties (ish) and teeth.

Also, we had GREAT hair!

Disconnection

Sometimes women find that their entire personalities change. They don’t recognise themselves anymore. Their bodies are different. Their minds are different. They feel different.

Sometimes, women feel as if they they’re going crazy and people say: ‘You’re effing crazy, you are!’

To be fair, they have just lobbed hubby’s best golf club over the back fence in a fit of hormonal rage..

But you know what? This menopause lark is NOT easy for many of us.

If people could spend a day being us – they would understand that it’s not craziness – it’s exhaustion, depletion and bewilderment.

It’s also a sense of disconnection, as if we are observing ourselves? Rather than owning our own bodies and minds. It’s hard to understand that we can never be the same as we were before the menopause. It’s just not biologically possible.

Hysteria

Have you ever started laughing at something funny for it to morph into hysterical crying?

This happened to me.

One minute I was laughing at Victoria Wood singing about being Freda being bent over backwards on her hostess trolley. Proper belly laughing. The next I was crying hysterically and OH was debating whether or not to call the chaps in white coats to come and inject me.

The cause?

Hormones.

Those little shits are the reason behind ALL the crappy bits of menopause.

Lack of Motivation

Basically, you get days where you have zero motivation. That pile of ironing? Sod it. Need to go shopping? Sod that too! You make a date with your duvet and something with Colin Firth/ Sean Bean/whoever in it and woe betide any human over the age of 14 who tries to come between you and your 13.5 togs!

Happy

We get moments of happiness too. Hurrah! Granted, these moments can turn from happy to not happy a bit sharpish (Boo) but you’ve got to understand that it’s all down to hormone imbalance.

It won’t always be this way.

One day your feral hormones will start behaving themselves. The hot flushes will trail off. The moods will stop swinging. The brain fog will clear and you will accept your new ‘norm’.

But inside you’ll always be 16, eh?

Mullet Queen 1986