The Menopause and Bad Dreams

Before the menopause, I’d go to sleep at night and wake up 8 or 9 hours later feeling refreshed and ready for another day’s crap. I’ve slept through storms and earthquakes and that’s despite being over-sensitive to noise in the daytime. It was one of my better points that I could lose myself in my sleep. Nowadays, a cat farting in the next street wakes me, and that’s despite being deaf in one ear.

I’ve always had vivid dreams, but they’ve often been pleasant ones. The kind of dreams where you don’t want to wake up, like the one with Nick Cage, myself and a jacuzzi. However, once I entered into the peri-menopause, my dreams started to get weird, bordering on nightmares. So now I’m convinced that Quentin Tarantino writes my dream scripts because they are so f**ked up. Dreams of headless horses and eight-legged frogs hanging out of my bottom? And those are not the worst ones. Even Freud would shit himself. Trust me.

I naively thought my sleep would go back to how it was once I was post-meno, but that’s not how this thing works because Mother Nature is a COW. So, like any self-respecting autie, I got researching and after a few hours trawling the internet, I found out that bad dreams are a problem for many menopausal women and if I had to take a wild guess at why it happens, I’d say that it’s partly to do with the lack of oestrogen.

To explain it, we need to go back to the scurge of womanhood.

PERIODS!

Oestrogen levels plunge at week four of the monthly cycle and the lower it goes, the more you want to stab people and eat your own weight in chocolate. You get your period and you’re a grumpy bastard for a few days, (especially if you have painful periods). In that case, you live on painkillers and walk around with a hot water bottle permanently strapped to your pelvis area. Once the levels start to rise your sanity is restored and your family can breathe easy again because the beast is back in it’s cage, albeit temporarily.

So, you get the picture that oestrogen is the calming hormone, right?

Well, there is a natural decline in oestrogen during the menopause and once it’s gone, it’s gone, unless it’s replaced with HRT, and even then it’s only a temporary measure.

I remember that my dreams used to turn nasty when I was on my period, so maybe it’s not so surprising that nearly all my dreams are bad now I’m menopausal?

So, what to do about it?

I’ve been back and forth to the doctors desperately trying to find answers for my sleep problems. Gotta be honest here, they don’t have a clue and if I hear the word, ‘anxiety dear’ one more time, I will strangle the offender with their stethoscope.

HRT is no longer an option for me, and even if it was, once I stopped taking it I would go back to having shit dreams. So, I might as well get my head around the fact that bad dreams are my new ‘normal’ and work on what I expose my brain to throughout the day, because, believe me, it’s relative.

So, what can we do to improve our sleep?

Positivity

Negative thoughts find their way into our dreams, especially when ‘good cop’ oestrogen is no longer there to beat the shit out of them them with her truncheon. REM is the part of sleep where we process our emotions, so it stands to reason that negative thoughts throughout the day will manifest as nightmares, yes?

The answer is simple: Be mindful of your thoughts.

The World

The world can be a scary place. The news highlights high mega-shit humans can be and exposing ourselves to these horrors can be detrimental – as can watching disturbing movies and TV. For instance, I like my psychological thrillers, but I can guarantee a crap night’s sleep if I watch them before bed. I try to remind myself to do some light reading or watch a life-affirming movie or comedy. That said, I had the ‘frog up the arse’ dream after watching Victoria Wood – a comedian. I managed to decipher the dream (ish) and remembered her talking about some bloke in the same hospital as her who had ‘accidentally’ sat on top of his Dyson hoover attachment. As you do. So, that explains the arse bit. However, I still can’t explain the frog. Or why it had eight legs. Where is Freud when you need him, eh?

Calcium and Magnesium

Some women swear by taking calcium and magnesium supplements before bed. I’m doing this, but as I have only been taking them for a few days, there’s no improvement as yet. I would recommend taking citrate versions of these supplements as carbonate can be constipating. However, if you have diarrhea based IBS, carbonate might help to dry you up a bit AND help you to sleep. Win and win!

A Sodding Great Big Glass of Gin?

Alas, no.

Alcohol might propel you off into sleepyland quickly enough, but you will have weird dreams and wake up in the early hours with a dry mouth or needing a big wee. Sorry, but no alcohol before bed if you want to improve your dreams and sleep in general.

Eating Late

Eating big meals late at night can cause sleep disturbance and vivid dreams. This is because your digestive system requires a lot of energy to digest food. Your heart-rate will rise for a start. Light snacks (non-sugary) won’t affect you as much. In some cases, it will help to balance blood sugar levels because being hungry also interferes with sleep.

Sleeping Pills

As they are designed for short term use, I don’t recommend them because this isn’t a short-term problem. Sleeping pills are addictive and you might find you can’t sleep without them. If so, you are most likely addicted and that’s not great.

Our bodies play a part in bad dreams, especially with anxiety cases like me. I think our brains respond to stress hormone surges as we sleep. I have noticed that I typically wake up between 4.30 and 5.30. The dreams I have just before I wake (with my heart hammering) start off being fairly boring, but they always take a sinister turn. Just before my eyes fly open, in strolls Tarantino, and my dream turns into Reservoir Dogs. For example, this morning I was screaming in my dream. I was in imminent danger of being harmed by something unseen, but sinister, when I woke up with my heart pounding. Our heart rates naturally speed up during REM (when we dream) and my sensitised brain associates the increase in heart rate as danger and wakes me up. Clever, but annoying as fuck.

If this is you, my advice would be to get up once you wake up. No matter how early that is. It’s tempting to try and go straight back to sleep, but here’s the thing: Adrenalin is surging through your body and even if you manage to fall back to sleep, you will continue to have vivid dreams. It becomes a cycle. Get up, move about a bit and burn some of that adrenalin off!

We worry because it’s our hearts. Surely, all this waking up with rapid heart beats will cause us harm? The reality is that our hearts are designed to withstand adrenaline surges because this natural response keeps us alive. It’s unpleasant, but not dangerous. A few deep breaths and my heart rate is back to normal because I don’t add fear to the mix anymore, so I rarely have full-blown panic attacks. However, if these kind of symptoms are new for you, and are accompanied by chest pain and breathlessness, you should seek medical help.

There are many reasons why we have bad dreams. In being mindful of what we ingest, via our bodies AND minds, we can improve the situation. But I also think we just have to accept that some nights we are going to have crap dreams. So, lets not worry about it too much because that in itself will earn us a bad night’s sleep.

“Nightmares exist outside of logic, and there’s little fun to be had in explanations; they’re antithetical to the poetry of fear.” Stephen King

 

 

 

Menopausal Middle-Aged Spread

My younger self listened to middle-aged women blaming their weight gain on the menopause..

‘I used to be six stone wet through, Sandra. Now I can’t breathe near a cake without gaining three stone!’

I deluded myself that ‘mid-life-spread’ wouldn’t happen to me because I’d always been relatively slim. I assumed I’d be one of those skinny old biddies like Dot Cotton off Eastenders, only shorter.

Before I go any further, this isn’t about ‘fat shaming’ because I admire plus size women who are body positive. I follow a few on social media and they look fabulous! They certainly know how to work those curves! However, I’ve also noticed that those women are not of menopausal age and here’s the thing:

Being menopausal and obese is a disease waiting to happen.

‘When you’re over 50 you have to pay attention to your health a bit’ ~ Dawn French

So, Mother Nature has taken the piss YET AGAIN because after tormenting me with 31 years worth of painful periods and psychotic mood swings, I’m now hauling an extra stone around with me every day – most of it around my middle.

I struggle with how being overweight makes me feel and being hyper-sensitive is probably the reason for this.

Why do we put on weight after the menopause?

  • Women are generally less active than before so muscle mass turns to fat.
  • Menopausal women are more prone to stress which produces high levels of cortisol. This causes us to put on weight around our middles resulting in the ‘muffin top’ effect.
  • Metabolism changes at menopause. It’s slower, so we have to put more effort in to burn fat.
  • Lifestyle habits such as comfort eating our way through family size bags of Revels and downing five gins a day.

‘So what do I have to do?’

It’s simple.

Exercise more, eat less and reduce your sugar intake.

Reduce sugar? Don’t swear at me!

Sugar (and fat) is what makes food addictive. Nobody comfort eats salad, right? However, overdoing it comes at a cost to our health. For this reason, I am concerned about the ‘eat what you want, as much as you want and fuck everybody who says otherwise yolo’ ethos of the body positive movement because it has serious consequences for menopausal women who have lost the protection their hormones once gave them. It in our long-term interests to be (and maintain) a healthy weight.

‘But-but-but I can’t live without five sugars in my tea!’

The current guidelines state that sugar shouldn’t take up more than 5% of our daily calorie intake. I know it’s hard and I haven’t ditched the sugar altogether, but I have reduced it drastically and that’s partly because blood sugar spikes trigger my palpitations.

‘Rightio. I’ll use sweeteners then.’

Sweeteners are an option, yes, but they can have side effects, especially for IBS sufferers, so do your research and see what works for you.

The Educational Stuff

Refined carbs such as white bread, potatoes, alcohol, biscuits, cakes and sugary drinks need to be limited because they make blood-sugar go bonkers and over a period of time this will lead to insulin resistance.

Blood sugar levels are regulated by eating unrefined whole foods such as fruits, vegetables, and whole grains. Boring as fuck, but necessary, as complex or unrefined carbohydrates are processed slowly over a longer period of time and require a small amount of insulin for metabolism. Personally, I can’t get as excited over brown rice as I do a plate of chips, but there you go..

So it’s not just as simple as limiting calorie intake. It’s no use eating 1200 calories if there are all refined carbs. This is where the word ‘balanced’ comes in. If we can eat a balanced diet with reduced calories, we will reap these benefits.

  • Clearer skin
  • More energy
  • Better concentration
  • Fewer hot flushes
  • Reduction of PMS
  • Improved sleep
  • Fewer mood swings
  • Better mental health
  • Fewer urges to stab people
  • Weight loss
  • Muscle mass
  • Less bloating

Tempting huh?

So, I downloaded a calorie counting app on my phone and set my limit to 1200 calories a day for a loss of 2lb a week and the result is that a week later I’ve lost 4lbs!

It’s amazing (not to mention alarming) just how many calories I’ve been shovelling into myself without realising it. It’s no wonder I am a stone overweight!

‘A stone? Big deal!’

I know it may not sound a massive amount, but it’s relative, because I’m 5ft 1 inches small AND I have sensory processing issues. That one stone might as well be five in my world and I REALLY struggle with how it feels!

Would it surprise you to know that I struggled with pregnancy for this reason? I was COLOSSAL with all three of my boys. Needless to say, I whinged throughout each pregnancy.

Again, it was Mother Nature having her little joke because there was no way she was going to allow me (a 6lb baby) to produce 6 lb babies of my own. Oh No. I had to heave 8 and 10 pounders out of my vagina. I mean, ffs!!!

So, everyone has their ‘perfect weight’ where they feel wonderful and healthy and the world is full of unicorns and sunbeams. Mine appears to be eight and a half stone – so that’s what I’m aiming for.

Basically, once menopause hits, we have to rethink our lifestyle or risk the proverbial shit hitting the fan health-wise, and by ‘shit’, I mean heart disease, cancer, diabetes and Alzheimer’s.

That’s the reality.

Yes, some women can eat what they like, drink what they like and smoke 100 fags a day and the bastards will live to be 100, but they are the exception, not the rule. Plus, what’s the point of longevity if you’re too ill to enjoy it?

Fuck it, Mildred. Lets get drunk and eat lots of cake!

It’s simple really.

  • Do more.
  • Eat less.
  • Eat healthily
  • Don’t skip meals
  • Reduce refined carbs
  • Stop smoking
  • Limit alcohol
  • Lower stress levels

The quality (and longevity) of our lives is in our hands now. According to Super Genes: ”Only 5% of disease-related gene mutations are fully deterministic, while 95% can be influenced by diet, behavior, and other environmental conditions.

We can kid ourselves that life is too short while we are scoffing our fourth chocolate digestive in a row and necking treble brandies, but the reality is that we are potentially the ones shortening it by making poor lifestyle choices.

The key word to mid-life health is moderation. A cake once a week won’t hurt you. Nor will the odd glass of alcohol. It’s when they are consumed in excess that the harm is done. Even the smallest of tweaks to our lifestyle will make a difference and one tweak generally leads to another as we begin to feel fabulous, right?

Viva la menopause!

Confessions of a Hypochondriac

Charles Darwin, Andy Warhol, Florence Nightingale all have something in common..

Ooh. What’s that? Intelligence? Creativity? Empathy? Fabulousness?

Well, all of those, but what I’m talking about is hypochondria.

A hypochondriac is someone who lives in fear of having a serious illness. This could even be despite medical tests never finding anything wrong. They may also have somatic symptom disorder known as illness anxiety disorder, health anxiety, or hypochondriasis.

I’ve written about my struggle with health anxiety before and I’m not ashamed to do so. The way I see it is this: The more we get mental illness out in the open, the more people can be helped, yes?

So if you’ve ever listed your aches and pains down in a diary or journal – you could be a hypochondriac.

Darwin, for instance, kept records of his own flatulence.

I like to think it read something like this..

Monday: Long. Rasping. Smells like something crawled into my colon and died.

Wednesday: Guffed. Put myself into a coma.

Saturday:  Woke up from coma & farted a 9.8 on the rectum scale.

Sunday: Attempted ‘danger fart’. Followed through. Mrs Darwin – NOT happy!

Darwin’s fart diary? That’s nowt. I kept records of my bowel movements. Yup, I lined the toilet with bog roll in order to inspect the contents of my own poo!

Then I wrote about my findings in my journal. *blush*

Note: A courtesy glance into the pan as you wipe your botty is NOT hypochondria. It’s normal. Advisable even. If there’s blood in your poo it could be an early sign of bowel cancer and early detection could save your life. We’ve all seen the Be Clear On Cancer ads, right?

Avoidance is probably worse than obsession because people ignore symptoms altogether, which was Andy Warhol’s story..

Warhol was a genius in his field, but he pathologically feared growing old and getting ill. He refused to go anywhere near hospitals and so he ignored a recurring gallbladder problem until the pain was bad enough to hospitalise him. Problem was, he’d left it too late.

Avoidance is a killer.

There is a midway between avoidance and obsession.

AWARENESS.

It’s normal to be aware of new symptoms and to seek help if problems persist, but I was doing went waaaaay beyond the realms of normality.

I compared my poo to the Bristol Shit Scale and one thing I learned from playing Miss Marple with my own crap is that EVERYTHING you ingest affects what comes out of your bottom. Even supplements!

P.S Calcium supplements can make your poo pale.

P.P.S They can also constipate you.

Pale bowel movements and hypochondria? What could possibly go wrong?!

DID YOU KNOW? Sweetcorn comes out appearing to have been undigested. Apparently it’s something to do with humans not being able to break down the cellulose husk? However, it is a good way of finding out how long the journey takes from food going in your mouth to it coming out the other end. In my case, sometimes the sweetcorn was outta there in a matter of hours. Sometimes it was festering for days..

Stress affects your digestion system. Fact. I varied from feeling nauseous and not being able to manage anything more than a dry cracker – to feeling ravenously hungry, even after a full meal.

When it comes to your bowels, stress can play havoc with them. Believe me! Some days I was crapping it up for Britain at 3am, whereas other days my poo got stuck in transit and I was stranded on the loo for what seemed like decades. One such day being when I, er, strained a bit and convinced myself I’d prolapsed my bowel.

I was on my own in the house – stranded in the bathroom with what felt like a grapefruit hanging out of my orifice.

I tentatively prodded the ‘mass’ with my finger.

As you do..

The only plausible explanation was that I’d forced my bowels out, right?

I texted OH: MY FUCKING BOWELS HAVE FALLEN OUT!

I rang the doctors and demanded to speak to my GP. Now, normally I avoid phone calls like Justin Bieber songs, but my fear of dying with my innards hanging out of my arse-hole overrode my phone phobia.

The jobsworth receptionist gave me the ‘You’ll have to make an appointment madam’ spiel, so I screamed at her that my bowels were hanging out of my bottom.

‘Ooh! Right. In that case, the doctor will phone you back as soon as possible.’

So my GP phoned back and listened as I hyperventilated in-between the words. My. Bowels. Have. Fallen. Out. Of. My. Bottom. He asked a few questions then said, ‘You’re constipated. I’m writing out a prescription for some Lactulose. Pick up in an hour’.

Lactulose? Why the fuck wasn’t I being taken to hospital to get my bowels shoved back up into their rightful place?

‘Wait, don’t you want to have a look up my bum?’

‘Well I can if you want me too, but from what you’ve described I’m 100% certain it’s constipation. You just need some stool softener.’

My GP obviously didn’t have a clue.

So I consulted another one.

Dr Google.

I can hear the sound of palms being slapped on faeces faces from here.

IDIOT! You type in constipation and two clicks later, you’re dead!!

Yes, I know, but fear overrides common sense. Also, you don’t need to make an appointment cos Doc Google is available 24/7.

Aside the usual cancer scaremongering, I was treated to some wonderful anecdotes of bowel prolapse. Not to mention graphic photographs of something resembling afterbirth protruding from people’s bottoms. Apparently prolapsed bowels are not uncommon with weight lifters? ‘Bob from Barnsley’ volunteered the info that the last time it happened to him (after an intense barbell lifting session) he simply poked his innards back up with his finger. ‘No fuckin problem’.

Quite.

Turns out my ‘prolapse’ was hard poo.

I’ll spare you the details of how I found that out.

Er, why are you talking about shit, you manky bastard?

Because IBS affects a lot of anxious people and until they know it’s IBS, they think it’s something terminal.

I thought it was bowel cancer.

It’s easy to understand how IBS can scare the living daylights out of people and a how health anxiety can develop, but if you ever find yourself poking around in your poo – it’s probably time to get some therapy!

There’s NO shame in being a hypochondriac.

Some of the world’s best have been hypochondriacs!

It’s hard to imagine Florence Nightingale (the most famous nurse in the universe) was in fact a hypochondriac, but she spent the last 57 years of her life bedridden convinced she was dying. Flo eventually flitted off her mortal coil at the grand old age of 90. Who says that doing sod all is no good for you?!

My health anxiety co-exists with a panic disorder, as it often does. The thing with panic disorder is that you get panic attacks, which are terrifying enough when they happen in the daytime, but the majority of mine happen at night. These are known as Nocturnal Panic Attacks and leading up to my crisis point I was having at least one attack every night, cue Insomnia! A tired mind is an irrational mind and all those normal symptoms of stress became life threatening to me.

There was a period where I was either pestering my doctors, the out of hours doctors or A & E. My health was my existence – my obsession.

I was having a mental breakdown.

Writing this post (specifically the literally shit bits) I can see the funny side, but at the time it was anything but funny.

IT WAS TERRIFYING.

I guess I was destined to breakdown at some point in my life because I am one of the many autistic people who’ve had to stumble through life undiagnosed. Once diagnosed we are labelled as ‘highly functioning’ though I can assure you that it’s a misleading term as most of us struggle to exist, let alone live.

I am also hyper-aware of changes in my body. Most people are unaware of such changes, but I’m special, innit?

Being naturally anxious (and obsessive) this makes me a prime candidate for health anxiety. Also, I’ve been exposed to death earlier than most as my family started dying off before I could say “Mummy, I’m going to be sick”. By the time I was 26 I’d lost all my grandparents, a school friend, my father-in-law, an aunt, an uncle and my father – The Reaper was on overtime with my lot!

When it’s written in black and white, it’s easy to see how I came to lose the plot. However, I knew I needed help, so I got some therapy. Got cured (ish) and I no longer stare at my poo longer than is necessary, or healthy.

Will I ever be free of health anxiety? Probably not, because worrying is stamped into my DNA. If they ever autopsy my body, they will find WORRIER written through me like a stick of Blackpool Rock!

There is a massive difference between controlling health anxiety and and it controlling you..

In between Andy Warhol and shit-prodders like me is awareness. It’s acting on persistent or unusual symptoms instead of ignoring them.

My advice is to learn about the effects of stress on the body. Start with this blog if you want. I’ve written about it enough times. Just search for health anxiety. Or read some books. Whatever. Just educate yourself because knowledge will help to remove the fear.

I write about my experiences to help people. No filters. I share my crap (literally in this post) so that people will see that there is no shame, whatsoever, in being mentally ill.

The End.

 

 

 

 

 

The Teenager That Santa Forgot..

One year, Santa forgot me.

It’s true.

To be fair, I wasn’t a small child. I was a teenager.

So how did I come to be left off Santa’s list?

It was 1985. The year of the first successful heart transplant, Windows 1.0, The Golden Girls, The Breakfast Club, Live Aid, Take on Me and wearing your jacket sleeves rolled up Miami Vice style..

I was:

Fifteen. Teenager. Vegetarian. Knew Everything. Annoying.

I don’t remember how I came to be vegetarian, I just know that from 14 I declared myself a meat free zone. I lived on cheese, as 80s vegetarian options looked (and tasted) like Trill. Thank God for Linda McCartney, eh? Problem was, Mum never did understand the concept of vegetarianism. She gave me cheese in place of meat but then poured gravy over it which kind of defeated the object..

Maybe it was hormones combined with my undiagnosed autism (and copious amounts of cheese) but my teenage years were funked up and not in a good way..

I’d argue that black was white and I’d do it with a PASSION. Not content with being meat-free, I terrorised everybody else for being ‘murderers’. Dad took it all in his stride. He thought it was hilarious, but Mum was suffering from the menopause (or rather we were suffering from her menopause) and that particular year she and I clashed more times than a pair of cymbals.

By Christmas, I was struggling. Doing the social thing exhausted me mentally and physically. Going out took hours of stimulating myself with rock music and days of recovery time afterwards. Every time I convinced myself it would get easier but it never did because exposure only works with shyness and I wasn’t shy. I was autistic.

That year I’d asked ‘Santa’ for loads of records including The Cult’s ‘Love‘. I’d been borrowing my mate’s LP but she was pissed off with it spending more time on my record player than hers, so I was looking forward to getting my own copy. Gimme a whoop!

Christmas Eve

We were allowed to lie on the sofa watching films all day and the jar of Quality Street was ceremoniously opened. It was a good day and in the evening Mum challenged her inner Hyacinth Bucket (It’s Bouquet) and did a candlelight supper, which was V posh.

I felt very grown up.

I was even allowed wine. SHHHHHHHH!

Dad was on the Jack Daniels.

Brother was semi-pissed on Southern Comfort.

Mum was on the Stella (I’ll fight you and everyone else) Artois.

Everyone was happy.

Until it went tits up..

I don’t remember what I said, exactly. Maybe it was something about meat and murder again? I just know that I opened my big mouth and said something that had my mother slamming the louvered doors off their hinges as she flounced off into the kitchen.

In my confused mind, ONE thing registered.

SHIT!

Dad was rolling his eyeballs.

Brother was smirking at me.

Elvis was crooning Blue Christmas in the background.

My mother was turning the air blue in the kitchen in-between nose blowing sessions.

Tentatively, I inched my way into the war zone but took one look at her face and knew that grovelling was futile. She looked like Alice Cooper, only with red eyes. Even in my limited understanding of body language, I knew my best (and only) option was bugger off upstairs and leave Dad to smooth things over.

So I went to bed and endured one of the most miserable nights of my 15 year old life.

What, in the name of Ian Astbury, had I said to incur SUCH a reaction?

I still don’t know.

All I know is that I was forever being reprimanded for ‘showing off’.

Showing off?

Er, I’M AN INTROVERT?!

In hindsight, I know that the Christmas Eve fiasco wasn’t ALL down to me. I blame Stella Artois and lack of oestrogen. Stella because it always made my mother do the crying thing and lack of estrogen put her on a permanent hair-trigger. It could have just as easily been my dad or my brother who said something to upset her, eh?

But it wasn’t them.

It was me.

Mostly what got me into trouble were my meltdowns. I’d become overwhelmed, therefore out of control, and it was interpreted as me being a little shit – as so often is the case with autism.

Nobody knew I was autistic.

Not even me.

Christmas Day

I unenthusiastically wished Jesus a happy birthday and prayed that he’d put in a good word with my mother overnight and she’d forgiven me for “ruining Christmas”. I lay in my miserable pit until I heard sounds of life downstairs, then slowly made my way down into the kitchen where Mum was perched on her stool puffing away on a Silk Cut. She narrowed her eyes at me. This look meant, ‘Approach me NOT. I’m still pissed off with you!’.

I slunk into the living room..

There, lit up in all it’s magnificence was our faux Christmas tree and underneath it were three piles of presents.

One for my brother.

One for my dad.

The third pile was my mother’s.

FUCK!

Didn’t say fuck – obvs -my life was hanging in the balance as it was.

For the first time in my existence, Santa had forgotten me.

I’D MADE THE NAUGHTY LIST.

THE SHAME!

Mum looked weird. Sort of angry and sad at the same time and that’s quite a hard one to pull off!

Brother was still smirking. That litle shit positively basked in my misery!

Tears slid down my face.

I don’t think I’ve ever felt so sorry for myself in all my life.

Dad couldn’t take it anymore. He looked at Mum and said, “You’ve made your point Flo. Come on now. It’s Christmas”

Mum snorted and flip- flopped upstairs in her new mule slippers.

A few minutes later she appeared with my presents.

She went from angry to misty eyed in a matter of seconds and hugged me so hard I thought she’d busted my lung.

“And let that be a lesson to you, Madam!”

Despite having no literally NO idea what this lesson was supposed to be, I chose to keep my trap shut.

Maybe that was the lesson?

Ordeal over, I started ripping into my pressies with the finesse of a three year old on E numbers.

My first gift?

It was Love.

When I tore off the wrapping paper that Christmas morning in 1985, I had no idea that 32 years later, the lyrics to the title song would have such significance to my very existence on this planet.

I guess you could say that I’ve spent most of my life in the ‘wrong hole’?

Now don’t go and ruin this moment by thinking rude thoughts about holes? *serious face*

I mean ‘wrong hole’ as in trying to be neurotypical.

Spent a long time in this hole
Spent a long time in the wrong hole

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Senses Working Overtime

I’m hypersensitive.

It means that I experience the world in an overly-sensitive way both physically and emotionally.

Hypertactile

For me, this means that I feel discomfort at the slightest touch – cue Five Starr with their MASSIVE shoulder pads. A hand on my arm can feel like a punch if I’m sensitised enough. Sometimes OH will touch my arm and I recoil as if I’ve been shot. I can see how this affects him but I’m unable to reassure him that it’s me, not him, because I struggle to verbalise how I feel.

I also can’t tolerate certain materials which are itchy and scratchy.

Aren’t they characters in the Simpsons?

Many of my clothes have ended up in charity bags due to them irritating the crap of me. Shoes, the same. I don’t like to feel as if I am wearing clothes, see. Sounds kinky, I know, but what I mean is that materials have to be soft and not constricting..

It’s been trial and error over the years. Like when I knitted myself a mohair jumper. I know, I’m an idiot, right? It took months to knit the bastard thing. I wore it once and chucked it straight in the charity bag because I itched like a dog with fleas. Lesson learned!

After decades of buying the wrong stuff, I’ve finally settled on leggings, tunic top and boots in Autumn/Winter and Spring/Summer is jeans, tee shirt and a pair of Converse hi-tops.

Not forgetting my beloved cardigans, one blue, one black, with pockets which I wear ALL YEAR ROUND!

Hypervision.

This means that I see what most people don’t. This can be annoying AND wonderful.

I see details that most people miss. This came in handy when I worked as a packer in a pharmaceuticals warehouse because I picked up on subtle differences in packaging, IE, counterfeiting.

It also means that fluorescent lights give me migraines, as does sunlight and the blue light emitted from computers and tablets.

Hyperhearing

I used to jump EVERY TIME the school bell went and without looking up I could tell which teacher had entered the room by the sound their shoes made. Some shoes were soft and and pleasing whereas others were squeaky and f**king annoying. My maths teacher in secondary school had a particularly irritating squeak in his right brogue and he was wearing the same pair when I left four years later..

Traffic also annoys me and don’t start me on emergency service sirens. On a good day they are LOUD. ON a bad day, hearing nee-nars makes me want to rip my ears off and sling them in someone’s privet. I also hear low level buzzing noises that nobody else can. Only thing is that since I developed tinnitus, it’s hard to work out what is actual buzzing and what isn’t..

I used to be able to hear a bee fart in the next street but over the years I’ve lost hearing in one ear. This is both good and bad. It means that the other ear over-compensates – which is disorientating. I do have a sexy hearing aid courtesy of the NHS but it amplifies sound too much and increases my sensory issues, so I hardly ever wear it, hence I say, “Eh?” and “What?” a lot.

On the other hand it helps when my tinnitus is giving me gyp.

The reason why autistic people have hearing sensitivity could be due to differences in the temporal lobe of the brain, which is the area that deals with auditory processing. Or it could be that responses are learned. I don’t think they know for sure why it happens..

By far, the biggest problem with my sensitivity is that I feel too much. Swiss researchers, Henry and Kamila Markram argue that the fundamental problem with Asperger’s is ‘hypersensitivity to experience’. Rather than people with Aspergers not feeling enough – the Markrams say that it’s actually the opposite and they feel too much. That’s definitely true of me. I’m both physically AND emotionally sensitive. Unkind words really hurt me. They scar me. You just can’t see them like a physical one.

If I see a homeless person lying in a doorway, I hurt for them. The down and outs. The underdogs. Life’s rejects. The weirdos. The persecuted. I hurt for them ALL. Emotionally I am a wreck of a human being and my sensitivity is the reason that I try and stay away from the news because I get overloaded with people’s pain. I know that most people see things on the news and feel empathy but it doesn’t haunt them forevermore. That’s the difference.

I HATE how people lie and deceive. To put your faith into someone only to be betrayed is soul destroying. Having been officially diagnosed as autistic, I understand how my vulnerabilities have been exploited over the years. People sense I’m different but they mistake silence for weakness.

Here’s the thing..

It’s NOT weakness.

Can you imagine how hard it is to exist in an increasingly sensory world?

To constantly feel that you have to adapt and camouflage yourself in order to fit in?

To live your entire life in a state of anxiety and having to make choices between everyday situations in order to lessen the stimulus?

To live like this EVERY SINGLE DAY takes strength my dears.

Neurotypical people do those things without thinking whereas I have to think about almost everything I do, even how to breathe when my anxiety is bad enough.

I guess that my problem is that I am just too sensitive for this world.

“You,” he said, “are a terribly real thing in a terribly false world, and that, I believe, is why you are in so much pain.” Emille Autumn ~ The Asylum For Wayward Victorian Girls.