Things People Say That Drive Autistic People NUTS!

You don’t look autistic.

Is autism supposed to have a look?

When a person says, ‘You don’t look autistic’, it’s fairly obvious they don’t have a blithering clue what autism is. Maybe they watched Rain Man and believe that every autistic person looks like Dustin Hoffman?

Or, that you should be wearing a skull guard helmet..

In all fairness, people probably think they are paying you a compliment (ish) but what they are actually doing is belittling the difficulties that you face on a daily basis. Also, in that person’s eyes it puts you above other autistic people (such as those who do wear protective head gear) because you can pass for ‘normal’ and they can’t.

Here’s the thing..

I don’t consider myself to be better (or less) than any other autistic person.

I don’t consider myself better (or less) than any neurotypical person.

We are all human beings.

You’re obviously high-functioning.

If by high functioning you mean I can speak, dress myself, take myself to the toilet and do housework? Yes, I can do those things.. However, to me, the term ‘highly functioning’ implies that I can do things WAY better than the average person.

A super functioner?

Where’s my cape and tights?!

Super strength? FUNCTIONING.

The reality is that a good day requires a LOT of effort and some days I struggle to function at all. When I am overwhelmed, I stop functioning aside the very basics needed to keep my family and myself alive. I shut down. I can’t speak. I can’t read beyond a single sentence. I can’t complete simple tasks like washing the dishes or folding laundry. My brain buffers, then freezes and it can take days for it to unravel itself. I have to spend hours on my own in order for this to happen.

Last night, I was in bed for 7pm.

I’m 47!

Would you say this is functioning highly?

What’s 97865 multiplied by 98?

Why do some people assume that autistic people are math geniuses?  I can’t stand the motherfudging subject!

My dislike (bordering on the pathological) of mathematics started in 1975 with the words ‘add and take away’.

I’ve been hyperventilating ever since..

I can give you the answer, but I’ll need a calculator.

In contrast, The Boy could recite his entire 12 times table at the age of 4. He likes maths – the weirdo.

What medication do you take for it?

I don’t take medication for my autism because it’s NOT A FARKING ILLNESS!!

I do, however, take medication for migraines, arthritis and the general aches and pains which comes from being an old fart.

Autism is an excuse for bad behaviour.

Autistic people don’t choose to have meltdowns.

They don’t wake up and think, ‘You know what? I REALLY fancy losing my shit today. Toast, anyone?’

It’s not a nice feeling to lose control, whether it manifests outwardly or internally. It is a reaction to overwhelming situations and having to use up so much energy trying to survive in an overwhelming world.

It’s EXTREME ANXIETY, not bad behaviour.

My sister’s friend’s brother is autistic. You’re nothing like him.

Firstly, I don’t have the necessary parts to be like your sister’s friend’s brother.

Secondly, no two autistic people are the same – just as no two NT people are the same.

Autistic people have similarities but all have different abilities and strengths. That said, we do share one thing in common, which is that each and every one of us is FABULOUSLY AWESOME!

You’re married, can hold down a job, have children. How can you do these things if you’re autistic?

With a great deal of effort, cocker.

I drive as well! Fancy that? An autistic person being let loose on the roads. QUELLE HORREUR!

P.S 25 + years of driving. No points. No parking tickets.

I also manage to drive AND lick the windscreen at the same time.

You’ve just been sarcastic. YOU CAN’T BE AUTISTIC!!!!!

I do irony too.

You’re a person with autism. You should use first language.

I am autistic. I am an autistic person. My autism defines me otherwise I wouldn’t be me.

Here, I can only speak for myself as some autistic people wouldn’t thank you for calling them autistic. They would be up in your face faster than you can fart. Having said that, the majority of autistic people use the term ‘autistic person’.

Incidentally, I saw a Facebook thread where the parent of an autistic teenager was having a mini-rant about people using the word ‘Aspie’ because it’s insulting, apparently.

The fact is that most people with Aspergers, refer to themselves as an Aspie.

I refer to myself as an Aspie but primarily I am an autistic person.

 

You can look me in the eye. You can’t be autistic!

Technically, I’m looking above your pupil but it’s such a subtle thing, you’re unlikely to be aware of it. As a child, I spent hours standing in the corner at school for being ‘rude’ and not looking at the teacher. I wasn’t EVER being rude. It distressed me to look people in the eye, so, technically, I was abused by every teacher who ever punished me for not doing it.

It’s taken decades for me to be able to maintain eye contact with people other than my immediate family and even now, when I am anxious, I will spend more time looking at your feet than your face. I have to remind myself to look up occasionally.

Yes, I can look you in the eye – sort of – and I am autistic.

 

 

Yours Mentally

Three days ago I stood outside my local cafe and hesitated before I opened the door.

‘Just sodding well go in, you loon!’ I bollocked myself.

I walked in and sat down at my usual table and within minutes the cafe owner was at my side, notepad in hand.

“Nice to see you! What can I get for you?”

‘Tea and toast please’

Five minutes later I was drinking my tea and was overcome with a sense of achievement.

I sent OH a text..

In the cafe. ON MY OWN! *smiley face*

I’ll forgive you for thinking ‘what on earth is the idiot on about now?’ but what if I was to tell you that it was the first time in over 12 months that I had been in ANY cafe on my own?

Being autistic, going into any public places requires effort due to my sensory and social issues but this post isn’t about my autism, not directly anyway.

The anxiety which has shadowed me from birth morphed into Panic Disorder in 2014, then General Anxiety Disorder and after three years of my body being constantly flooded with stress hormones, I had a nervous breakdown.

Definition: A nervous or mental breakdown is a term used to describe a period of intense mental distress. During this period, you’re unable to function in your everyday life.

At the peak of my illness,  I visited my GP ten times, A&E twice and the out of hours GP service twice – this was in a period of two weeks. EACH time I was convinced I would be admitted to hospital. EACH time, I was told it was anxiety.

When it came to symptoms, I had the works with my entire body from my scalp to my toes being affected. I felt sick ALL of the time and kept spontaneously retching. On one occasion I sat in the GP’s office retching violently into a cardboard bowl. She said I had a gastric bug but I’d been retching for the past three years (just not in public) so if it was a gastric bug then I was breaking some kind of record! Another time I was walking down the street and retched so hard I actually vomited over myself.

Barfing, not dancing, in the street.

My weight dropped into the 7 stone range and my muscles were starting to waste. I was starting to look like Skeletor, only less sexy..

My bowels woke me up at 4-5am with a ‘MOVE IT OR YOU’LL SHIT THE BED’ cramping in my lower regions. I’d also wake in the early hours shaking violently, not that it woke OH. Nothing short of the house blowing up would have roused him from his coma..

I couldn’t tolerate drugs, even painkillers. Come to think of it, even vitamins gave me gyp.

Palpitations? Don’t start me.

My mouth was sore but with no visible cause because I checked via a dental mirror NUMEROUS times. Yes, REALLY! You do things like this when you are mentally ill, see. You spend hours inspecting yourself and prodding your poo. Dignified, no?

I had test after test but all came back clear.

‘All those doctors can’t be wrong, Sweetie’, OH said.

‘They just haven’t found the cancer yet dearie.’ countered Fear.

By far, the most debilitating symptom was the feeling that I was losing my mind..

My grip on reality can be iffy at the best of times but this was in a different realm completely. I struggled to go out or be on my own. My stims became more noticeable and I had no control over them at all. My rocking went from my usual subtle movement to virtually falling off the chair-rocking and my lips were sore from frantically picking the skin off them.  I couldn’t see a way out and in my worst moment I actually wanted to be sectioned.

Yep, you read that right. I wanted to be thrown in the big house where they could put me to bye-byes and be there for me 24/7. I understand now just how poorly I was and If I hadn’t have turned myself around when I did, I may not have had any choice in the matter..

I threw everything at getting better. I did relaxation and yoga. I cut out sugar, caffeine, alcohol, gluten etc but none of it helped for long because I wasn’t accepting how I felt. I was fighting Fear ALL the way..

The breakthrough came when I was told I would have to have a colonoscopy. I was SO convinced I was coffing it that I accepted my fate AND all those weird and unwonderful sensations. I told myself to enjoy what time I had left because Fear could eff right off if it thought it could rob me of that too. With support from OH and a few good friends, including one who’s had a breakdown of his own, I began to see blue sky even in the shadow of my imagined death.

Beautiful Blue Sky

I stuffed food into my mouth and didn’t dwell on how crap it made me feel. I lived alongside Fear and accepted whatever it threw at me. What had I got to lose?

I started to put weight on and my tummy started to rumble again. I FELT HUNGRY!!

I told myself constantly that ‘whatever happens to me. I am here, NOW’.

Then my bum got invaded courtesy of the NHS, and everything was fine. I wasn’t dying (HURRAH) but I had to face the fact that I was mentally ill..

My weight is now back up to 8 and a half stone and my heart isn’t pounding all the time. The anxiety will always be there but I’m not in crisis anymore. I have taken steps to help myself, the biggest and most important being ACCEPTANCE.

There were many times when depression tangoed with the anxiety and I thought I would slip further into insanity but my mind is stronger than I could ever have imagined. It’s healing itself, especially now I understand that magic word, acceptance.

So, yeah, I went to the cafe alone. It was a GINORMOUS step and I’m PROUD of me. I know that recovery is a long process and there will be setbacks along the way but that’s ALL they will be because I’ve accepted fear for what it is.

We need fear. It stops us from being reckless but fear should work for us, not the other way around. That jumped up little git needs to know it’s place, innit.

If you are reading this and are struggling with mental illness, know that you CAN get better. It’s your thoughts that have put you where you are and it’s your thoughts that will set you free.

Yours, mentally

ACCEPT

 All Images Via Creative Commons