IBS: The Big Squeeze

If you are unlucky enough to have IBS, (irritable bowel syndrome), you have my sympathy. It’s shit. Literally

What’s IBS?

IBS is a condition that affects the digestive system causing stomach cramps, diaria diahorea diarr the shits, bloating and constipation.

It’s common.

It comes and goes.

It’s usually life-long.

There’s no cure for IBS but it can be managed with medication, relaxation therapies, changes to diet and carrying spare bog roll.

With IBS some people poo for Britain. Others can’t poo. Some unfortunate sods alternate between the two.

Me? I have constipation dominant IBS, but it hasn’t always been the case. Do you want to know more? Or have you hit the X tab yet?

My IBS started when I was under a considerable amount of stress. My, (then), husband was having a nervous breakdown and his timing was especially crap because I was about to give birth to our second child. My digestive system took a direct hit and subsequently threw in the towel. I was 21.

At the start of my IBS I wasn’t constipated. On the contrary. The slightest hint of adrenalin and I was releasing the ‘sewer snake’. Bizarrely I needed a poo every time I went up into the loft, I have no idea why, it’s not as if our loft was an exciting place, it was cramped and full of stuff we couldn’t be arsed to take to the tip. Even so, within minutes of climbing up there my colon would start doing the can-can and I’d be taking the loft-ladders two steps at a time trying to get down to the bathroom.

By then, the time-scale between ‘stirrings’ and potentially soiling myself had reduced alarmingly. You get my drift?

Twenty, (plus), years on things have changed. I’m invariably constipated. Bummer, right? Alongside this is right-sided pain and bloating. These days I only have to side-glance a pea and I look 6 months pregnant!

Oh, and I fart a lot.

Ladies do not fart!

One, I’m no lady.

Two, everybody farts.

Even kittens!

So first, let’s define constipation.

  • infrequent poos
  • difficulty or straining when you poo
  • feeling of being unable to completely empty during a bowel movement, or the sensation of wanting to go but not being able to.
  • you fart for Britain.

I don’t know about anybody else, but my pain goes away a bit when I finally do manage to ‘download some brownware’.

Living With Constipation and IBS

Diet

I find it helpful to keep a food diary to see which foods give me gyp. Dairy and wheat are the usual suspects, but a lot of other foods can aggravate IBS symptoms.

Eating your food as close as it is to its natural state will benefit you and your bottom. As a general rule, if something has an ingredient list a mile long – it’s best to avoid. Also, overdoing the fruit and veg could make things worse. Remember me and peas?

Big one this: Never skip meals!

Also, stop eating when you are full.

Look, if you can’t breathe, there’s no room for pudding. You’ve had to undo your stretch-fit jeans as it is!

Laxatives

Sometimes it’s necessary to take laxatives. Occasionally I have to give myself a rid-out with prescription laxatives. This is only when the other methods have failed. Or I’ve been on the codeine. Eight sachets of this stuff and my colon surrenders itself completely. It’s what the GP calls a ‘bowel reset.’ This is a last resort and it’s under the supervision of my GP.

*It’s NOT a good idea to rely on laxatives indefinitely!*

Water

Dehydration causes constipation, so fill up on the H20!

Exercise

Moving about helps to keep everything flowing within the digestive system. There is a reason that most bed-bound people become constipated. Walk. Swim. Breakdance. Whatever. Just move.

Relaxation

If you have IBS, chances are you are stressed-to-shit, (if only ha ha), so it makes sense to address your stress-levels and do as much relaxation as possible.

Straining

Just typing this sub-title brings tears to my eyes!

One must always try and resist the urge to strain out a bowel movement!

We’ve all been there. Stranded on the lav with Mr Turtle’s head and his front legs hanging out of our lower orifice. It’s like the colon REALLY wants to go for it, then half way through says, ‘ You know what? Sod it. I’m bored now. Laters, yeah?’

What to do? We can’t sit there indefinitely with poo hanging out of our arses, can we?

Do we reach round and help Mr Turtle out? *boaks* Or do we take a deep breath in – grab onto the sides of the toilet seat – and bloomin well go for it?

Then there’s the pain..

Once I had to peer into the pan to make sure I wasn’t passing glass shards because that’s what it f**king well felt like!

It felt like labour. I was having to do the hoo-hoo-hoo breathing and everything.

I was cold and sweaty.

This was hardcore defecating and it comes to no surprise to me to learn that a lot of people die on the toilet. Granted most of those are elderly or have heart conditions. It’s a spike in blood pressure that finishes them off, apparently.

In the end, I birthed what felt like an 30lb baby through my bum-hole. In reality, it was a turd the size of a raisin. I was both awed and horrified at how something SO small could cause me SO much pain. It was a lot like giving birth, actually – only minus the drugs.

A straining session for me ensures a visit from Emma Roids (piles) where it hurts to sit down. Standing up’s isn’t much better. Plus, they itch like buggery!

Let me tell you now. There is NO dignity, whatsoever, in having to ram a three-inch suppository into one’s quivering bum-hole. Or anybody elses. Or in buying tubes of Anusol in the local supermarket. It’s hardly discreet is it? The clue’s in the name. ANUSol.

At this point, you’re either horrified (bordering on projectile vomiting) or nodding with profuse empathy. If it’s the latter, I pity you.

My last remaining tips are as follows..

Toilet Roll

Don’t buy cheap 2 ply. Your botty deserves better, no? Plus, yer fingers go through the cheap crap – which can be icky. Pay extra and pamper the poop-shute!

NOTE: Definitely, no IZAL. Using Izal is akin to wiping one’s arse with a crisp packet!

Blood in Poo

If you have piles through straining you may or may not experience blood when you wipe. Or you might see it in the pan. If this happens to you and it’s your first time, postpone the heart-failure. It’s most likely due to piles. Get it checked out, just to make sure.

Purge, When You Get The Urge

For this, I penned a lil poem.

Every time you need a poo.

Go t’ bathroom and sit on t’loo.

Look at your phone or read a book.*

Don’t delay cus it’ll hurt like fuck hell.

Changes In What’s Normal For You

If your symptoms change see your GP. 99.9% of the time it’s nothing to worry about, but it’s always better to be safe than sorry.

Finally, talking about what’s going on with your bowels is only as embarrassing as you want to make it. It’s a normal (and essential) bodily function. Embarrassment costs lives. Opening up (shameless pun) can mean the difference between life and death. Nuff said?

  • Don’t sit on the loo for hours reading books or messing with youir phone. You’ll make yer piles worse!

Autism and Burnout

Burnout is a chronic state of stress which leads to physical and emotional exhaustion. It might manifest as anxiety or depression or both.

The Signs Of Physical and Emotional Exhaustion

  • Fatigue: You lack energy and feel more tired than usual.
  • Insomnia: Starts with the occasional bad night and progresses to the inability to sleep or stay asleep every night.
  • Concentration: Lack of sleep affects concentration and the ability to complete tasks.
  • Physical Symptoms: Palpitations, chest pain, chills, stomach aches, headaches and hundreds of other physical symptoms that make you worry that you are gravely ill which in turn forces you even further down the wormhole.
  • Illness: Your body becomes more susceptible to immune related illness.
  • Appetite: You may lose your appetite or go the other way and over-eat, especially sugary or high-carb foods.

Alongside the physical signs, there are emotional signs.

  • Loss of enjoyment about things you love.
  • Negativity: You become pessimistic about everything. In my case, it isn’t glass half empty. It’s glass smashed into smithereens all over the floor!
  • Isolation: Socialising is hard work for most autistic people but during burnout, we don’t have the energy or inclination to socialise at all. This includes social media.
  • Detachment: As an autist, I have always felt detached from everybody else but detachment from burnout can be a detachment from everything including yourself.

When you reach this stage it is illness.

A lot of autistic people will reach burnout stage at some point in their lives. The reason is that trying to exist in an NT world is stressful and exhausting and the human body can only take so much battering from stress hormones before it starts to burnout.

Burnout.

Nervous Breakdown.

Shutdown.

Call it what you will but it ALL amounts to the same thing.

Your body has had enough and is no longer whispering words of warning to you. IT IS SCREAMING AT YOU TO FUCKING DO SOMETHING!

The whispers started for me as a small child when I constantly felt sick or threw up and was living in a constant state of fear.

The whispers got louder as a teenager when I developed an eating disorder as a way of trying to gain control of my own life.

As a twenty-something the whispers told me that it wasn’t normal to be seeing ‘black things’ scurrying across the floor that nobody else could see or imaginary spiders in front of my eyes.

At thirty-something I tried to shut the whispers up with alcohol.

At forty-something my mother died and I had my first nocturnal panic attack.

At 46 years of age I had a nervous breakdown.

Finally, my body said ‘ENOUGH’.

Physically and mentally, I burned out.

My body has pumped so much adrenalin into my system that my fight or flight response now triggers when it shouldn’t – like in response to my dreams or the heating coming on. This is why I have insomnia. This is why I wake up in the early hours every morning.

Why do autistic people burn out?

The more ‘highly functioning’ we are, the more is expected of us and the more we push ourselves to be neurotypical. People can’t see what’s going on inside of us. They just see somebody who ‘looks’ perfectly normal. The effort it takes to be able to pull this off is phenomenal and sooner or later, the consequences will be burnout.

A lot of autistic people suffer from anxiety and anxiety means fear.

We fear walking out of the front door into a noisy and confusing world. We fear having to socialise. We fear having to make small conversation at work. We fear that we will lose control. We fear people being able to see past our pretence of being neurotypical. We fear rejection. We fear there being no escape route.

We fear.

Our hearts beat faster. Our bodies are constantly primed to fight or run. The fight or flight response is triggered numerous times a day and over time it takes longer for our bodies to recover from it. Eventually, even the fittest of us will succumb to illness. Either physical, mental or both.

Once you have had a breakdown you are never the same. It’s an invisible scar. A wormhole opened up and you know that it won’t take a lot for you to lose yourself down there again. As if life wasn’t already tough enough? Now there is this fragility about you. The difference is that by now you know you have to take better care of yourself and your needs.

You learn to say no.

You learn to let go of people/situations that drain you.

You accept your limitations.

You will hang up the neurotypical ‘skin suit’ for good.

What the fark is a skin suit?

If you’ve ever seen Men in Black, you’ll be familiar with the big ol’ ‘bug’ who comes to Earth. The alien nicks farmer Edgar’s skin so he can look less, er, conspicuous. Only it’s not his skin, so it doesn’t fit. He looks weird and it makes him uber cranky because it feels pretty shit to be wearing someone else’s skin. A bit like trying to cram yourself into size ten jeans when you are a generous twelve..

Feeling ‘alien’ is a feeling that a lot of autistic people identify with. We feel like we don’t belong here and a lot of us pretend to be neurotypical in order to not stand out. It’s an act and acting requires effort. When we shut the outside world out, it’s such a relief to finally be us.

My breakdown coincided with my diagnosis and even though I am still fighting to rid myself of panic disorder and insomnia, I am finally free of the constricting neurotypical suit I’ve been inhabiting for the majority of my life.

I feel lighter.

I don’t push myself to be ‘normal’ anymore.

If I can’t go to social functions I don’t beat myself up about it.

If I can’t face shopping in the supermarket, I’ll do it online.

I haven’t given up on life. I just find ways that make living a little easier.

When I get overwhelmed I shut myself away like I have always done. The difference is that I no longer feel guilty about it. People can think what the hell they like because you know what? They will anyway because that’s what people do.

This is no longer about them.

It’s about you.

It’s about self-care.

With social media, I get overwhelmed pretty quickly so I have learned to give myself breaks from it and to limit time spent on the internet. The internet can get pretty intense and I soak up the negative stuff like a sponge. Bad news and hate is all over the internet. It affects me, then I get ill. Yes, we live in a computer age and the internet can be useful but it can also be damaging to your mental health so it’s up to us to police our internet time so it works for us not against us.

I have also accepted that I can’t do ‘life’ on my own so now I ask for help when I need it. Being autistic, there are certain things that I struggle with. Asking for help, isn’t being weak. It’s self-care.

The thing is that I’ve have put so much effort into existing that I’m exhausted and for what?

To fit in?

So I don’t offend people by saying no?

I’m done with all that.

We should all be done with that, right?

If you can identify with this post. Please don’t let another day go by where you live your life on somebody else’s terms. If it hasn’t already, it will make you ill.

It’s time to be the fabulous human being you were born to be.

It’s time to be you.

“If you celebrate your differentness, the world will, too. It believes exactly what you tell it—through the words you use to describe yourself, the actions you take to care for yourself, and the choices you make to express yourself. Tell the world you are one-of-a-kind creation who came here to experience wonder and spread joy. Expect to be accommodated.” ~ Victoria Moran – Lit From Within

 

 

 

 

 

 

 

Beauty and the Menopause

I’m menopausal. Have I ever mentioned that? Think I might have done. I’m 47 but my biological age puts me somewhere in my mid-fifties. This is because Mother Nature can be a flipping cow when the mood takes her. Or maybe it’s to do with genetics? The bottom line is that the menopause changes you.

That’s why it’s called ‘THE CHANGE’.

The menopause is all about maintenance of the body AND brain. Or you can just say, ‘f**k it’ and let yourself go. That’s not an option for me because my mother and grandmother took pride in their appearance and they would haunt the crap out of me if I let myself go. Even when I was in the middle of a breakdown, I went through my routine. I just used a lot more dry shampoo because washing my hair triggered panic attacks but that’s for another blog post..

When it comes to hanging onto our bits and pieces, like hair, skin, nails and teeth, we need to work a LOT harder. We need to be aware of the changes in our body and work with them. Alas, some women are not prepared to put the work in after the menopause.

They allow their leg hair to go feral.

They neglect their toenails.

They allow their teeth to fall out.

They give up on themselves.

This does NOT have to be you.

Here are a few tips to help you stick the V’s up to looking old because if you look old, you will feel old. So grab your reading specs and get comfy.

Bathing

Once upon a time, we were able to soak in the bath for HOURS. Nowadays, we get twenty minutes max before we turn prune. No time for reading or daydreaming about Sean Bean. It’s ALL about BODY-CARE.

Menopausal skin is dry skin. There are numerous reasons for this, like lack of oestrogen, genetics, sun-exposure, alcohol and smoking. At this stage of the game you need to be moisturising the LIVING SHIT out of your skin. If you don’t, you’ll end up looking like Keith Richards, and if that’s not enough to have you sprinting to the skincare section of your nearest Superdrug, I don’t know what is..

Are you still using soap? As in, a normal bar of soap?

If so.

That tight feeling you get after using soap is because it’s removed the natural oils from your skin. If you must use soap, at least use a sensitive one with a low pH. Giving yourself a ‘lick’ with an ancient bar of Imperial Leather isn’t on. Throw it away!

When choosing bath or shower products, you need to look for moisturising ones. Glittery bath bombs? What are you, six years old? I use Sanex because it’s the only brand that doesn’t make me itch myself delirious. It’s also a good idea to ensure that you have a decent bath mat or you’ll be up the A & E with a fracture having face-planted your taps reaching for the loofar.

Oh and don’t forget to exfoliate that dead skin off!

Shaving

Obviously, I mean legs and lady bits although you may also be sporting a teensie weensie moustache by now. What can I say? Men get rogue nostril/ear hair. Women get muzzies.

A problem with ageing is that we may not as supple as we used to be. There are exceptions but mostly we start creaking like old floorboards with about as much flexibility. When it comes to de-fuzzing our legs, we can’t reach around the back as well as we could, so we end up with 6″ hairs which are a bit of a turn off. The days of girlie Bic razors (pastel shades) are gone. You are now in the Black and Decker power range and hardcore action is required to tackle your unsightly, er, premises. However, if you prefer the wild and natural look, you can save yourself time and money.

Nails

I’m autistic and struggle with eye contact so I look at the floor a lot which means I get to see people’s feet and believe me, I have seen some HIDEOUSLY BAD FEET in my time. I’m talking CLAWS, rather than nails. There are certain health conditions which cause problems of the foot but unless you are unfortunate enough to have such a problem, there is no excuse for sinisterly bad nails. If you really can’t be arsed to sort your nails out (or pay somebody to do it for you) then do us all favour and shove a sock over them.

A word about nail polish..

Is my general advice to steer clear of blues, greens and purples if you have varicose veins..

Make-up

Less is More.

When it comes to make-up and ageing, I often think of dear old Barbara Cartland. She was an amazing lady but wouldn’t you have thought that those closest to her would have advised her to lay off the electric blue eyeshadow at her age? In certain photographs she looks positively sinister! Thing is, wear the same make-up that you’ve worn for decades if you like but it will AGE you. If you find that people are stopping you in the street and booking you for children’s parties, it’s time to tone it down a few notches.

IT’S NOT THE 1980s ANYMORE, DEARS!

Look at it this way, teenagers use make up to make themselves look older. When you are older, the opposite applies. You need to wear LESS make-up to look younger.

Teeth

Now is the time that you REALLY need to start paying attention to your teeth.

As we age our teeth become worn and discoloured. Medication plays havoc with our oral health and we suffer bone and muscle loss. If we don’t take care of our teeth, we end up looking like Albert Steptoe. Sounds grim but there is much we can do to keep tooth loss at bay. For a start, brushing twice daily is a MUST. Flossing is a MUST. As we get older, gaps appear and food gets lodged in those crevices which brushing alone won’t remove. Blimey. I sound like an advert for toothpaste. But it’s true. How do you feel about last weeks bacon sarnie rotting away in your mouth? Barfarama, eh?

Thanks to receding gums, you will find that you have more enamel on show than you used to. This is something that I have noticed about myself to the point where I wonder if I should be running in the 2.30 at Goodward? Nothing you can do about this except to keep your gynormous teeth dazzlingly white. You could always offer your services as a mobile side-screen at your local cricket club. How about a Bee Gees tribute act? The possibilities are there, if only you choose to look.

There is a very serious side to gum health though…

How many of you know that gum disease can lead to heart disease, strokes and diabetes? Our hearts no longer have the protection of oestrogen so we need to look after ourselves more then ever, yes?

That’s all for today dears. Keep smiling, eh?

Creative Common Images Via Pixabay